• Paul Gallen

    Through hard work and persistence, Paul has become one of the elite players in the NRL, regularly running out for NSW and Australia in the representative arena.

    A leader and inspiration to the fans and his teammates at the Sharks and now the father of two young children, Charley and Cody, Paul is always a willing and active participant in charity and community events. A qualified plumber, he was named on the NRL’s All-Academic team in 2011 for his work and study away from the field.

    Gallen chalked up his 250th appearance in first grade against the Raiders in Round 19 of the 2015 season, before becoming the first (and most likely, the last) NRL player to be honoured with a ‘253rd game’ run-through banner in Round 22 against the North Queensland Cowboys.

  • Rochelle Collis

    Rochelle Collis, together with her partner Zoya Wong, own and operate one of Sydney’s busiest cosmetic franchise clinics at Laser Clinics Australia, Bondi Junction.

    Rochelle Collis continually advances her knowledge of skin rejuvenation and cosmetic injections to enhance and maintain a person’s natural youthful appearance. Taking ownership of Laser Clinics Australia’s clinic in Bondi Junction in 2012, Rochelle’s invigorating passion now ensures that the clinic trades as one of Sydney’s busiest.

    Rochelle is a devoted executive woman, managing an average of 650 clients per week, 20 staff and 5 cosmetic injectors.

    Laser Clinics Australia specialises in providing tailored non-invasive treatments that leave you looking your natural best. For full-face rejuvenation, a combination of skin treatments such as Dermal Stamping with Fractional Radio Frequency, skin peels, laser pigmentation removal, and cosmetic filler and anti-wrinkle injections, will leave your skin looking flawless.

    Dedicated to driving a new kind of laser, skin and cosmetic clinic, Rochelle has reinvented and reimagined the way in which women and men can go about improving and maintaining their appearance. A desire to provide exceptional client service’ directs her focus with a determination to stay a leading provider in skincare and well-administered cosmetic injections.

    Rochelle says “Consumers want results but most of all they want value.

    Rochelle has an impressive 14 years of pharmaceutical experience under her belt, in which she developed comprehensive knowledge of anatomy and skin physiology. Between 2006 and 2012, Rochelle worked for international leading manufacturing company Q-Med, the makers of Restylane, in the role of account manager and product portfolio trainer.

    This role involved ensuring that proper examination of facial aesthetics lead to nourished skin. She trained medical professionals on the range of Restylane of fillers, skin boosters and skincare to meet market trends and patient desires, including that of filling out wrinkles, increasing fullness in the lips or face, hydration and overall rejuvenation of the quality of the skin.

    Rochelle’s skill was cultured from many multiple national and international scientific and aesthetic symposiums. Rochelle worked with University Anatomists, International Plastic Surgeons as well as local Cosmetic Injectors to establish and disseminate new techniques. She adopted new pricing strategies and implemented consumer campaigns on a national level, an experience that has structured the way she runs her clinic to suit the needs of the client.

    Rochelle’s de facto partner Babak Moini is the founder of Laser Clinics Australia, Skinstitut, The Cosmetic Institute and Smile Dental Clinics. Both Babak and Rochelle live and work their life’s passion in the cosmetic industry.

    Not one to sit back, Rochelle seeks the latest technologies and techniques, and provides the key information to keep treatments up-to-date and at an affordable price. She has become a thought leader for the cosmetic industry.

    Laser Clinics Australia has been able to offer cosmetic treatments to the masses because of our affordable pricing and dedication to a quality service and result. Quote Rochelle

  • Charlotte Caslick

    Charlotte Caslick is a dual international, representing Australia in touch football before being drafted into the successful Australian Rugby 7s team. In 2013 as an 18 year-old she played in her first Rugby 7s World Cup in Moscow and her performances during that tournament established her reputation as the team’s leading play-maker.
    Standout performances during the 2013/14 World Series saw her nominated as World Rugby 7s Player of the Year. Underlining her consistency she won a further nomination for that award in the 2014/15 season and was named in the first ever World Rugby 7s Dream Team.
    Charlotte continues to enhance her reputation as one of the world’s leading players, collecting the World Series title in the 2015/16 season , winning the MVP award in Sao Paulo & Player of the Final in Atlanta along with being named in the World Rugby 7s Dream Team for a second time. The highlight for Charlotte in 2016 was being an integral part of the Australian 7s team to win GOLD at the Rio Olympics.
    The Australian Women’s 7s team is currently ranked No. 1 in the world.
    ‘I grew up in Brisbane and always had very supportive family and friends. My two older brothers both played rugby and obviously had a big influence on my sporting choices. I attended Brisbane State High, which has a rich rugby heritage, and shortly after graduating, moved to Sydney to join the Australian Rugby 7s program full time. I now live with my partner who is a member of the Australian men’s 7s team and 2 other girls from my squad.’
    Charlotte made her mark on the rugby 7s world in more ways than one. A self-confessed girly-girl, she was quickly identified as the girl with pig-tails and bowed ribbons in her hair. In the world’s fastest growing female participation sport, a generation of rugby 7s starlets have followed her lead.
    ‘In my spare time I love to get dressed up – I love fashion, make up and going out. We live near the beach, so I also spend a fair bit of time down there.’
    ‘It’s amazing that I get to travel the world doing something I love!’

  • Kerry-Anne Johnston

    Kerry-Anne Johnston is a proud Goodwill Ambassador for FSHD Global Research Foundation. Kerry-Anne has supported the Foundation since 2013 and continues to enthusiastically engage in and assist with fundraising and events.

    A true philanthropist, Kerry-Anne is also a founding patron of the Australian Redcross Society of Women Leaders (SWL); a Starbassador and wishgranter for the Starlight Children’s Foundation; a co-patron with her husband Gary of The Steve Waugh Foundation (assisting children with rare diseases) and a sponsor of a research program Charlie’s Champions which is headed by Dr Charlie Teo into the cure for brain cancer in children.

    She is presently CEO of The Bayard Foundation, a private fund helping charities in need set up through their family company Jaycar Electronics.

    Formerly Kerry-Anne worked for The Department of Education for 21 years, teaching both in Australia and overseas. Achieving Assistant Principal and Senior Education Officer in Mathematics, she wrote curriculum and programs to support teachers in over 90 schools. Kerry-Anne assisted in piloting an assessment in Year 7 now known as NAPLAN. Assessing students in Literacy and Numeracy across Australia.

    A true feminist, a mother and step mother to four children and grandmother, Kerry-Anne is passionate about helping those in need and making a difference.

  • Lewis Holland

    Lewis Holland started his journey with rugby Union as a 12 year old, when he was selected for the ACT Brumbies under12 representative side; this lead to his inclusion in what was then the Gold Cup Pathways Program. Training sessions of up to 4 times a week involved travelling from Braidwood, accruing upwards of 1000km per week in travel, no mean feat for a 14 year old and a benchmark for his determination and dedication that has continued throughout his career to date.

    In 2010 Lewis was chosen in the Australian School Boys Representative side that toured the South Pacific and New Zealand, he then returned to Canberra to train with the Brumbies.

    In February 2011 he attended the Darwin Hottest 7’s as a member of the Brumbies and caught the eye, of the then coach of the Australian 7’s Men’s side Michael O’Conner, he was elevated into the squad, and week later found himself debuting in Wellington NZ as the youngest player.

    In September that year Lewis was bestowed one of the highest honors in sport when he was chosen to carry the flag for Australia at the opening ceremony of the Youth Commonwealth Games held in the Isle of Mann. Lewis captained the rugby 7’s side which secured a bronze medal.

    2012 saw Lewis’ inclusion in the Australia Under 20’s rugby side which competed in South Africa, which along with his Australian Men’s 7’s rugby representation he was awarded the Graham Gordon Memorial Trophy for the ACT Under 20’s Player of the Year.

    2013 highlight of the year was the 7’s Rugby World Cup, which was held in Moscow.

    Lewis missed out on selection for the 2014 Glasgow Commonwealth Games and most of the season due to injury, but made a successful return in 2015 to help win the Oceania Championships, which secured a spot for the men’s side in the 2016 Rio Olympics.

    Lewis had an explosive tournament in February of 2016 in the first ever Sydney leg of the World Series Competition, it saw him return to his pre injury form and play some of his best rugby ever.

    In August 2016 Lewis added Australian Olympian to his badges of honor.

    In a cruel twist of fate, in pre season training he suffered a complete rupture of his Achilles tendon, a season ending injury and a 12-month rehabilitation program.

    Lewis will now apply himself off the field, which was made official by the ARU, when they announced that he would be Club Captain for the 2016/2017 seasons.

    Lewis will use this time to mentor the new and younger members of the squad with his vast knowledge and 7 years of international representation, whilst he rebuilds personally to return in time for the 2017 Commonwealth Games.

  • Emma Weatherley

    Emma was diagnosed with FSHD at the age of 32 and has become an active member of the FSHD community. Emma is a CPA Qualified Accountant and works for Queensland Rail. A mother of two beautiful daughters, aged 7 and 9, who currently do not exhibit any symptoms of FSHD. Emma is hoping that even if a diagnosis of FSHD is in her children’s future, it will not be the life changing situation that it is right now, because a treatment or cure will be available. Emma describes life with FSHD as a constant juggling act, finding a balance between ability, activity and adaption, while trying to minimise and manage pain and fatigue. After speaking at the 2015 Sydney Chocolate Ball, Emma realised how sharing her story with others can help create awareness and understanding of life with FSHD, and disability in general. She hopes to be able to empower others with FSHD to do the same, and contribute to awareness and fundraising activities, particularly in her home state of Queensland.

  • Tania Spagnolini

    Tania has a background in hospitality and catering and is currently studying accounting. She is also juggling caring for her elderly mother who has FSHD whilst also raising her young daughter and simultaneously grappling with the degenerative effects of her own FSHD. She remains optimistic for finding a cure and has been a volunteer for several years for FSHD Global, focussing primarily on fund raising activities.

  • Julie Wood

    I am humbled to be given the opportunity to become an ambassador for FSHD Global who undertakes such vital research work. Bill Moss’ enthusiasm is infectious and I was positively inspired after attending my first Sydney Chocolate Ball. I knew then that I wanted to help this great Foundation find the cure and spread awareness giving hope to this that have it.

  • Ben Schultz

    Ben is currently Managing Director of Aurelius Leisure Group which operates the popular Sydney CBD venue – Scruffy Murphy’s. He also consults for two other hospitality management groups and three security firms on operations management, sales and marketing strategies. Ben is a highly motivated and accomplished leader and has watched the Foundation grow since its inception.

  • Rohan Hardcastle

    Rohan works as a barrister in Sydney and has a practice which includes corporate disputes, disciplinary proceedings and public inquiries. Rohan graduated in law from the University of Western Australia before working as an associate to Justice Robert French AC. He then completed a doctorate at the University of Oxford as a Menzies Scholar. Upon returning to Australia, Rohan worked as an associate to Justice Dyson Heydon AC at the High Court.

  • Carol Major

    Carol is a Blue Mountains writer. She has very mild FSHD. Her daughter Monica Ellis inherited the condition in an extreme form. Monica, an inspirational artist, was an ambassador for the Foundation and raised money through her paintings and cards. Monica died on March 4th 2015. Carol wishes to pick up her heroic baton to find a cure for this disease.