Managing Your Health

There is a misconception that because there are no approved drug treatments for FSHD then there is nothing you can do.

While it is true that at the moment there has been no treatment that has been shown to stop progression or reverse damage caused by FSHD. There are many treatment techniques used at the moment that are applicable to FSHD and may provide some help and improve quality of life.

It’s important to note that many of the therapies listed below have little empirical evidence supporting their use in FSHD. This just means that studies have not been done on these treatments. Because FSHD is so variable it is difficult to predict what treatments may work for you. An individualised plan developed in collaboration with a health professional you trust will help you decide on the best treatments.

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