CORE TEAM

2021-10-20T12:12:56+10:00

Natalie Cooney

Chairperson
Natalie Cooney is an entrepreneurial philanthropist at heart. Having grown up with FSHD ....
2019-11-14T13:44:09+10:00

Danielle Thomson

Chief Executive Officer
Danielle has worked in marketing and communications for the past 17 years, ....
2021-10-25T14:06:17+10:00

Emma Weatherley

Executive Director
After her diagnosis of FSHD in her early 30’s, Emma’s desire to understand her condition led ...
2021-11-15T11:41:32+10:00

Lianne Blanche

Finance Administrator
Lianne has worked in the non-profit sector for more than 20 years and brings a wealth of ...
2020-03-12T09:11:06+10:00

Jelena Zivanovic

Marketing Manager
Jelena is an experienced marketing professional with 13 years’ experience in communications....
2019-11-14T13:44:51+10:00

Tania Spagnolini

Community Liaison Officer
Tania has a background in hospitality and catering and is currently working for FSHD Global ....