OUR MISSION

“The foundation’s mission is to find a cure for Facioscapulohumeral Muscular Dystrophy (FSHD) within five years.

Through transparency, accountability, good governance and pure passion we aim to achieve results as quickly as possible.”

“The Foundation is committed to advancing global medical research, education and collaboration to improve quality of life and ultimately find a cure for FSHD.

Through transparency, accountability, good governance and pure passion we aim to achieve results as quickly as possible.”