Facioscapulohumeral Muscular Dystrophy (FSHD) is a highly complex disease and progressive muscle wasting disease causing

weakening and loss of skeletal muscle in adults and children, robbing the ability to walk, talk, smile, blink or even eat.

The FSHD Global Research Foundation was established in 2007 with a core mission to fund treatments and

an ultimate cure for FSHD. Over the years the Foundation has proudly raised over $20 million

from its philanthropic and corporate community funding over 56 medical research grants across 11 countries.

This multi-award winning Foundation has significantly advanced global research into muscle wellness, muscle technology and

drug discovery to advance clinical trials for FSHD.

Driven by strong governance, purpose and passion, we rely on your support to drive research, awareness and fundraising for our mission.