Facioscapulohumeral Muscular Dystrophy (FSHD) is a highly complex disease and progressive muscle wasting disease causing weakening and loss of skeletal muscle in adults and children, robbing the ability to walk, talk, smile, blink or even eat.

The FSHD Global Research Foundation was established in 2007 with a core mission to fund treatments and an ultimate cure for FSHD.

Since 2007, the Foundation has committed over $11 million to fund 56 ongoing medical research grants in 11 countries; the USA, Canada, the Netherlands, Israel, Italy, France, Belgium, Spain, New Zealand and Australia.

This multi-award winning Foundation has significantly advanced global research into muscle wellness, muscle technology and drug discovery to advance clinical trials for FSHD.

Driven by strong governance, purpose and passion, we rely on your support to drive research, awareness and fundraising for our mission.