Facioscapulohumeral Muscular Dystrophy (FSHD) is a highly complex genetic muscle wasting disease causing progressive weakening and loss of muscle in adults and children, robbing the ability to walk, talk, smile, blink or even eat.
We fund medical grants, investing into biotech, and progress the pathway for clinical trials to fast-track disease modifying therapies.
We are focused on slowing the progression of FSHD and improving quality of life through investment in muscle wellness and technologies. FSHD Global Research Foundation is bigger than one disease – we are creating a better future for muscles for everyone.
Through patient and medical advocacy, we drive systemic change through advancing diagnostic and medical infrastructure to support therapeutic development and improved quality of life and lobby to ensure our patients will have access to future approved therapies.
We support well managed biotechnology companies that are focused on novel treatments for FSHD or are specifically developing treatments to improve musculoskeletal health, strength and wellbeing.
Unleash your inner hero and help us give life to
muscles through your heart, hands, pocket or time.
Make a tax-deductible donation
today to help us give life to muscles.
We accept cash and cryptocurrency.
We have valued partnerships with corporations across all industries that benefit the organisation, its employees and the Foundation.
Our innovative patient-led registry for FSHD enables Australians living with FSHD to obtain their ‘Clinical Trial Passport’, guiding you through the steps to complete all diagnostic testing and questionnaires required to join our community of trial ready patients and contribute to groundbreaking research. Cure FSHD is proudly part of the Treat NMD global registry framework.
We have a strong, dynamic and driven team. Through active fundraising and the support of the wider community, we advance towards clinical trials and drug developments, aimed at preventing muscle wasting and improving quality of life for those living with FSHD.
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How You Can Help
Help the cause by donating to the foundation today.