Our Story
The FSHD Global Research Foundation was established in 2007 by Australian businessman, philanthropist and sufferer of FSHD, Bill Moss AO. Our mission is to find a cure for Facioscapulohumeral muscular dystrophy (FSHD) within five years. A disease that affects an estimated one million people globally. It is caused by an overexpression of a protein called DUX4, which is toxic to muscle.
The true prevalence of this disease is still unknown. Due to poor diagnostics and misdiagnosis, many people live unaware they carry the genetic gene, at risk of passing down generations. The Foundation’s aim is to increase awareness and fund national and international researchers to undertake both clinical and basic research projects that can lead to identifying the cause and a future cure for FSHD. We also aim to increase the knowledge and awareness of FSHD among medical practitioners, researchers, patients, donors and the general community.
ALLOCATION OF TAXABLE DEDUCTIONS
Inception – 2019: As of 30th June
$10,778,335 Total Tax Deductible Donations
A 100% MODEL
The FSHD Global Research Foundation is a pure Australian not-for-profit organisation investing 100% of all tax deductible donations funding both basic epigenetics and therapeutic clinical trials, establishing drug developments to prevent muscle wasting. With a global footprint on science, our award winning structure relies on non tax deductible revenue and sponsorships to support all overhead expenses.
ACHIEVEMENTS
In its truest sense, FSHD Global is a little organisation doing some very big things.
48 ongoing medical research grants
'FSHD Find the Cure' App
$10M invested in research in 12 years
100% pure charity model
Funded by the people for the people
Educating scientists globally
Expert advice for $0
Multiple award winning charity
FSHD MOBILE APP
Yor can also donate through our mobile application on App Store and Google Play.
