Facioscapulohumeral muscular dystrophy
affects children and adults. This is a disease that causes irreversible weakening and wasting of muscles.
OUR MISSION
The Foundation is committed to advancing global medical research, education and collaboration to improve quality of life and ultimately find a cure for Facioscapulohumeral Dystrophy. Through transparency, accountability, good governance and pure passion we aim to achieve results as quickly as possible.
ALLOCATION OF TAXABLE DEDUCTIONS
FY 2008-2016: As of 30th June
*Total amount allocated to medical research grants and medical research education equals 100% of tax deductible donations.
A 100% MODEL
The FSHD Global Research Foundation is a pure Australian not-for-profit organisation investing 100% of all tax deductible donations funding both basic epigenetics and therapeutic clinical trials, establishing drug developments to prevent muscle wasting. With a global footprint on science, our award winning structure relies on non tax deductible revenue and sponsorships to support all overhead expenses.
ACHIEVEMENTS
In its truest sense, FSHD Global is a little organisation doing some very big things.
40 ongoing
research grants
'FSHD Find
the Cure' App
$8.3M invested
in research
100% pure
charity model
Funded by
the people
for the people
Educating
scientists
globally
Expert advice
for $0
Multiple award
winning charity
2 years in a row
TRACK YOUR DONATION
Enter your donor number below to view a history of your donations and the research you have supported
What is FSHD?
FSHD is unlike most genetic conditions where a mutation causes pathological changes in a particular gene and protein. FSHD is caused by mutations that actually increase the expression of a toxic protein.
