Facioscapulohumeral muscular dystrophy

affects children and adults. This is a disease that causes irreversible weakening and wasting of muscles.

FUNDRAISE

Benefit others
with your support

RESEARCH

Help us find a cure

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OUR MISSION


The Foundation is committed to advancing global medical research, education and collaboration to improve quality of life and ultimately find a cure for Facioscapulohumeral Dystrophy. Through transparency, accountability, good governance and pure passion we aim to achieve results as quickly as possible.

ALLOCATION OF TAXABLE DEDUCTIONS

FY 2008-2016: As of 30th June


*Total amount allocated to medical research grants and medical research education equals 100% of tax deductible donations.

A 100% MODEL

The FSHD Global Research Foundation is a pure Australian not-for-profit organisation investing 100% of all tax deductible donations funding both basic epigenetics and therapeutic clinical trials, establishing drug developments to prevent muscle wasting. With a global footprint on science, our award winning structure relies on non tax deductible revenue and sponsorships to support all overhead expenses.

ACHIEVEMENTS

In its truest sense, FSHD Global is a little organisation doing some very big things.


40 ongoing
research grants

'FSHD Find
the Cure' App

$8.3M invested
in research

100% pure
charity model

Funded by
the people
for the people

Educating
scientists
globally

Expert advice
for $0

Multiple award
winning charity
2 years in a row

TRACK YOUR DONATION

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What is FSHD?

FSHD is unlike most genetic conditions where a mutation causes pathological changes in a particular gene and protein. FSHD is caused by mutations that actually increase the expression of a toxic protein.


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