Winner of Outstanding Achievement in the Australian Charity Awards 2021, 2020, 2019 and 2018 Winner of the Charity of the Year in 2017.
The FSHD Medical Education Portal is a ‘one stop shop’ for people living with FSHD. This platform provides education on advancements in the disease, access to clinical trial readiness programs and the Australian FSHD Registry.
Our Board of Directors, Science Advisory Boards, Patrons and Ambassadors receive $0 remuneration
55 ongoing Medical Research grants into Basic, Diagnostic, Therapeutic and Biotech research areas
With the onset of COVID-19 our proud record of allocating 100% of tax deductible donations to medical research has reduced to 90%
FSHD Global has raised over $18 million in 13 years funding medical research in 10 countries
FSHD Global launched Australia’s first FSHD educational toolkits for patients, GP’s and allied health groups to better understand the impact of living with FSHD
We remain one of the largest contributors to FSHD medical research worldwide