We believe in
Giving Life to Muscles
by building muscles
for those who can’t.
Through our funded research and advocacy
programs we are dedicated to finding treatments
and an ultimate cure for FSHD, while improving
the quality of life for everyone who needs
healthy muscles.
Watch our Vision play_circle_outline
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What is FSHD?

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Facioscapulohumeral Muscular Dystrophy (FSHD) is a highly complex genetic muscle wasting disease causing progressive weakening and loss of muscle in adults and children, robbing the ability to walk, talk, smile, blink or even eat.

Our Key Pillars

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Find A Cure

We fund medical grants, investing into biotech, and progress the pathway for clinical trials to fast-track disease modifying therapies.

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Muscle Regeneration

We are focused on slowing the progression of FSHD and improving quality of life through investment in muscle wellness and technologies. FSHD Global Research Foundation is bigger than one disease – we are creating a better future for muscles for everyone.

Patient & Medical Advocacy

Through patient and medical advocacy, we drive systemic change through advancing diagnostic and medical infrastructure to support therapeutic development and improved quality of life and lobby to ensure our patients will have access to future approved therapies.

Biotech

Biotech

We support well managed biotechnology companies that are focused on novel treatments for FSHD or are specifically developing treatments to improve musculoskeletal health, strength and wellbeing. 

How You Can Help

Unleash your inner hero and help us give life to
muscles through your heart, hands, pocket or time.

Donate

Make a tax-deductible donation
today to help us give life to muscles.
We accept cash and cryptocurrency.

Signature Events

Our signature events are designed to
make you feel good while you’re
doing good.

Volunteer

Give your time to put your muscle
behind the cause! We rely on the
passion and empathy of volunteers
across all aspects of our work, from
events to professional skills.

Corporate Partnerships

We have valued partnerships with corporations across all industries that benefit the organisation, its employees and the Foundation.

Join Cure FSHD!

Our innovative patient-led registry for FSHD enables Australians living with FSHD to obtain their ‘Clinical Trial Passport’, guiding you through the steps to complete all diagnostic testing and questionnaires required to join our community of trial ready patients and contribute to groundbreaking research. Cure FSHD is proudly part of the Treat NMD global registry framework.

Patient Registry
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Signature Events

Register your interest now! arrow_forward_ios Sydney Chocolate
Ball 2025
The ball will be back in 2025
Please join us for the 14th Annual Sydney Chocolate Ball, an elegant evening of all things chocolate! Hosted by Jamie Durie OAM, this extravagant night will feature world class entertainment, a chocolate inspired menu designed by celebrity chef Luke Mangan OAM, and fine champagne flowing. Traditionally a sold-out event, this is one gala dinner not to be missed!
Register Now! arrow_forward_ios Muscles4Muscles Our aim is to raise $50,000 to
help fast track treatments to
our FSHD community.
Get creative and share your journey via your social media platforms. Be sure to follow the Muscles4Muscles social media channels and the FSHD Global social media platforms for constant updates, tips and tricks. Don’t forget to add our hashtag: #muscles4muscles and #fshdglobal
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About Us

We have a strong, dynamic and driven team. Through active fundraising and the support of the wider community, we advance towards clinical trials and drug developments, aimed at preventing muscle wasting and improving quality of life for those living with FSHD.