Multi-award winning Charity
Winner of Outstanding Achievement in the Australian Charity Awards 2020, 2019 and 2018 Winner of the Charity of the Year in 2017
The FSHD Medical Education Portal is a ‘one stop shop’ for people living with FSHD. This platform provides education on advancements in the disease, access to clinical trial readiness programs and the Australian FSHD Registry.
Our Board of Directors, Science Advisory Boards, Patrons and Ambassadors receive $0 remuneration
Ongoing Medical Research grants
51 ongoing Medical Research grants into Basic, Diagnostic, Therapeutic and Biotech research areas
100% of all tax deductible donations
With the onset of COVID-19 our proud record of allocating 100% of tax deductible donations to medical research has reduced to 90%
$18 million in 12 years
FSHD Global has raised over $18 million in 12 years funding medical research in 10 countries
FSHD educational toolkits
FSHD Global launched Australia’s first FSHD educational toolkits for patients, GP’s and allied health groups to better understand the impact of living with FSHD
Largest contributors to FSHD medical research
We remain one of the largest contributors to FSHD medical research worldwide
Multi-award winning Charity
Winner of Outstanding Achievement in the Australian Charity Awards 2020, 2019 and 2018 Winner of the Charity of the Year in 2017
The FSHD Medical Education Portal is a ‘one stop shop’ for people living with FSHD. This platform provides education on advancements in the disease, access to clinical trial readiness programs and the Australian FSHD Registry.
Our Board of Directors, Science Advisory Boards, Patrons and Ambassadors receive $0 remuneration
Ongoing Medical Research grants
51 ongoing Medical Research grants into Basic, Diagnostic, Therapeutic and Biotech research areas
100% of all tax deductible donations
With the onset of COVID-19 our proud record of allocating 100% of tax deductible donations to medical research has reduced to 90%
$18 million in 12 years
FSHD Global has raised over $18 million in 12 years funding medical research in 10 countries
FSHD educational toolkits
FSHD Global launched Australia’s first FSHD educational toolkits for patients, GP’s and allied health groups to better understand the impact of living with FSHD
Largest contributors to FSHD medical research
We remain one of the largest contributors to FSHD medical research worldwide
ALLOCATION OF TAXABLE DEDUCTIONS
Inception – 2020: As of 30th June
$11,353,283 Total Tax Deductible Donations
A 100% MODEL
The FSHD Global Research Foundation is a pure Australian not-for-profit organisation investing 100% of all tax deductible donations funding both basic epigenetics and therapeutic clinical trials, establishing drug developments to prevent muscle wasting. With a global footprint on science, our award winning structure relies on non tax deductible revenue and sponsorship to support all overhead expenses.
Traditionally, 100% of all cash tax deductible donations are allocated to current or future medical research investment, grants and educations. The Foundations operating expenses are covered by other non-tax deductible fundraising activities such as sponsorship, events, campaigns and auctions. As a result of COVID-19 and the cancellation of the 2020 Sydney Chocolate Ball, our operating model for the 2020 financial year sits at 90%.
