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What is FSHD?
How do people get FSHD?
Who can be affected by FSHD?
Signs & Symptoms of FSHD
Diagnosis & Genetic Testing
Understanding the Genetics – Types of FSHD
Early-onset FSHD (Infantile FSHD)
How are people affected by FSHD?
Support available for Australians living with FSHD
Managing Your Health
How We Help
Medical Research
Grant Applications
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Glossary
Clinical Trials
Patient & Medical Advocacy
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Facio BioTherapies
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Sydney Chocolate Ball
LUXE Lunch
Club Wyndham Surf Challenge
Muscles For Muscles
World FSHD Day
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Host A Corporate Event
About Us
Board of Directors
Core Team
Patrons
Scientific Committee
Scentific Advisory Board
News & Media
What is FSHD?
How do people get FSHD?
Who can be affected by FSHD?
Signs & Symptoms of FSHD
Diagnosis & Genetic Testing
Understanding the Genetics – Types of FSHD
Early-onset FSHD (Infantile FSHD)
How are people affected by FSHD?
Support available for Australians living with FSHD
Managing Your Health
How We Help
Medical Research
Grant Applications
Publications
Glossary
Clinical Trials
Patient & Medical Advocacy
Biotech
Facio BioTherapies
How You Can Help
Donations
Volunteer With Us
Corporate Partnership
Community Fundraising
Signature Events
Sydney Chocolate Ball
LUXE Lunch
Club Wyndham Surf Challenge
Muscles For Muscles
World FSHD Day
Photo Gallery
Video Gallery
Host A Corporate Event
About Us
Board of Directors
Core Team
Patrons
Scientific Committee
Scentific Advisory Board
News & Media
Photo Gallery
2025 Corporate Surf Challenge
2025 Sydney Chocolate Ball
Parliamentary Friends of FSHD Event 2025
2024 Corporate Surf Challenge
2024 Sydney Chocolate Ball
2023 Sydney Chocolate Ball
2019 Sydney Chocolate Ball
2018 Sydney Chocolate Ball
2017 FSHD Global Golf Tournament
2017 Sydney Chocolate Ball
Luxury Drive Day 2017
2016 FSHD Global Poker Tournament
2016 FSHD Global Golf Tournament
2016 Sydney Chocolate Ball
2015 FSHD Sydney Chocolate Ball
Luxe Lunch 2015
Madison Marcus FSHD Golf Tournament 2015
2014 FSHD Global Golf Tournament Day 2
2014 Corporate Surf Challenge
2014 FSHD Global Tournament Day 1
2014 FSHD Sydney Chocolate Ball
2013 FSHD Global Golf Tournament
2013 Global Roll
FSHD Global Lindt Chocolate Ball 2013
2012 FSHD Chocolate Sydney Ball
FSHD Global Golf Tournament 2012
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Home
What is FSHD?
How do people get FSHD?
Who can be affected by FSHD?
Signs & Symptoms of FSHD
Diagnosis & Genetic Testing
Understanding the Genetics – Types of FSHD
Early-onset FSHD (Infantile FSHD)
How are people affected by FSHD?
Support available for Australians living with FSHD
Managing Your Health
How We Help
Medical Research
Grant Applications
Publications
Glossary
Clinical Trials
Patient & Medical Advocacy
Biotech
Facio BioTherapies
How You Can Help
Donations
Volunteer With Us
Corporate Partnership
Signature Events
Sydney Chocolate Ball
Muscles For Muscles
World FSHD Day
Photo Gallery
Video Gallery
Host A Corporate Event
About Us
Board of Directors
Core Team
Patrons
Scientific Committee
Scentific Advisory Board
Patient Registry
Donate
