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What is FSHD?
How do people get FSHD?
Who can be affected by FSHD?
Signs & Symptoms of FSHD
Diagnosis & Genetic Testing
Understanding the Genetics – Types of FSHD
Early-onset FSHD (Infantile FSHD)
How are people affected by FSHD?
Support available for Australians living with FSHD
Managing Your Health
How We Help
Medical Research
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Clinical Trials
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Sydney Chocolate Ball
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Club Wyndham Surf Challenge
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World FSHD Day
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About Us
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Core Team
Patrons
Scientific Committee
Scentific Advisory Board
News & Media
What is FSHD?
How do people get FSHD?
Who can be affected by FSHD?
Signs & Symptoms of FSHD
Diagnosis & Genetic Testing
Understanding the Genetics – Types of FSHD
Early-onset FSHD (Infantile FSHD)
How are people affected by FSHD?
Support available for Australians living with FSHD
Managing Your Health
How We Help
Medical Research
Grant Applications
Publications
Glossary
Clinical Trials
Patient & Medical Advocacy
Biotech
Facio BioTherapies
How You Can Help
Donations
Volunteer With Us
Corporate Partnership
Community Fundraising
Signature Events
Sydney Chocolate Ball
LUXE Lunch
Club Wyndham Surf Challenge
Muscles For Muscles
World FSHD Day
Photo Gallery
Video Gallery
Host A Corporate Event
About Us
Board of Directors
Core Team
Patrons
Scientific Committee
Scentific Advisory Board
News & Media
Video Gallery
2025 Sydney Chocolate Ball Highlights
2025 Sydney Chocolate Ball - CEO & Managing Director, Emma Weatherley and Ambassador, Zaharrah
2025 Sydney Chocolate Ball - Mitch Albert and his mum Rachael
2025 Sydney Chocolate Ball - Chairperson Natalie Cooney and Founder Bill Moss Speech
2024 Sydney Chocolate Ball Highlights
2024 Sydney Chocolate Ball - Chairperson Natalie Cooney Speech
2024 Sydney Chocolate Ball - Managing Director, Emma Weatherley
2024 Sydney Chocolate Ball – Guest Speakers Zaharrah Priestley and her parents, Dimity and Mark
2024 Sydney Chocolate Ball – Guest Speaker Prof. Silvia Blemker, Springbok Analytics
2023 Sydney Chocolate Ball Highlights
2022 Sydney Chocolate Ball – Guest Speaker Prof. Peter Jones
2022 Sydney Chocolate Ball – Natalie Cooney Chairman Speech
2022 Sydney Chocolate Ball – Emma Weatherley Speech
2022 Sydney Chocolate Ball – Bill Moss AO Speech
2019 Sydney Chocolate Ball – Emily Partridge
2019 Sydney Chocolate Ball – Opening Performance
2019 Sydney Chocolate Ball - Guest Speakers Emma and Hannah
2019 FSHD Documentary
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Home
What is FSHD?
How do people get FSHD?
Who can be affected by FSHD?
Signs & Symptoms of FSHD
Diagnosis & Genetic Testing
Understanding the Genetics – Types of FSHD
Early-onset FSHD (Infantile FSHD)
How are people affected by FSHD?
Support available for Australians living with FSHD
Managing Your Health
How We Help
Medical Research
Grant Applications
Publications
Glossary
Clinical Trials
Patient & Medical Advocacy
Biotech
Facio BioTherapies
How You Can Help
Donations
Volunteer With Us
Corporate Partnership
Signature Events
Sydney Chocolate Ball
Muscles For Muscles
World FSHD Day
Photo Gallery
Video Gallery
Host A Corporate Event
About Us
Board of Directors
Core Team
Patrons
Scientific Committee
Scentific Advisory Board
Patient Registry
Donate