YOUTUBE
2018 Sydney Chocolate Ball Highlights
Faciocapulohumeral Muscular Dystrophy(FSHD) is a complex and progressive muscle wasting disease. FSHD is one of the most common forms of muscular dystrophy in both adults and children.
Kees van der Graaf Speech 2018 Sydney Chocolate Ball-FSHD
Kees van der Graaf is a founding investor in FSHD Unlimited and chairs its Board. In 1997, Kees and his wife, Renee, established the DutchFSHD Foundation.
Natalie Cooney Speech 2018 Sydney Chocolate Ball-FSHD Global
Natalie Cooney is the Managing Director of the FSHD Global Research Foundation. She is a formidableleader who is spear heading innovation, growth and purpose into the Fooundation.