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What is FSHD?
How do people get FSHD?
Who can be affected by FSHD?
Signs & Symptoms of FSHD
Diagnosis & Genetic Testing
Understanding the Genetics – Types of FSHD
Early-onset FSHD (Infantile FSHD)
How are people affected by FSHD?
Support available for Australians living with FSHD
Managing Your Health
How We Help
Medical Research
Grant Applications
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Clinical Trials
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Facio BioTherapies
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Sydney Chocolate Ball
Muscles4Muscles
World FSHD Day
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About Us
Board of Directors
Core Team
Patrons
Scientific Committee
Scentific Advisory Board
What is FSHD?
How do people get FSHD?
Who can be affected by FSHD?
Signs & Symptoms of FSHD
Diagnosis & Genetic Testing
Understanding the Genetics – Types of FSHD
Early-onset FSHD (Infantile FSHD)
How are people affected by FSHD?
Support available for Australians living with FSHD
Managing Your Health
How We Help
Medical Research
Grant Applications
Publications
Glossary
Clinical Trials
Patient & Medical Advocacy
Biotech
Facio BioTherapies
How You Can Help
Donations
Volunteer With Us
Corporate Partnership
Community Fundraising
Signature Events
Sydney Chocolate Ball
Muscles4Muscles
World FSHD Day
Photo Gallery
Video Gallery
Host A Corporate Event
About Us
Board of Directors
Core Team
Patrons
Scientific Committee
Scentific Advisory Board
Video Gallery
2024 Sydney Chocolate Ball – Guest Speakers Zaharrah Priestley and her parents, Dimity and Mark
2024 Sydney Chocolate Ball – Guest Speaker Prof. Silvia Blemker, Springbok Analytics
FSHD Chocolate Ball 2023
2022 Sydney Chocolate Ball – Guest Speaker Prof. Peter Jones
2022 Sydney Chocolate Ball – Natalie Cooney Chairman Speech
2022 Sydney Chocolate Ball – Emma Weatherley Speech
2022 Sydney Chocolate Ball – Bill Moss AO Speech
Emily Partridge – Chocolate Ball 2019
Opening Performance – Chocolate Ball 2019
Emma and Hannah Guest Speakers
FSHD Documentary 2019
View More
Home
What is FSHD?
How do people get FSHD?
Who can be affected by FSHD?
Signs & Symptoms of FSHD
Diagnosis & Genetic Testing
Understanding the Genetics – Types of FSHD
Early-onset FSHD (Infantile FSHD)
How are people affected by FSHD?
Support available for Australians living with FSHD
Managing Your Health
How We Help
Medical Research
Grant Applications
Publications
Glossary
Clinical Trials
Patient & Medical Advocacy
Biotech
Facio BioTherapies
How You Can Help
Donations
Volunteer With Us
Corporate Partnership
Signature Events
Sydney Chocolate Ball
Muscles4Muscles
World FSHD Day
Photo Gallery
Video Gallery
Host A Corporate Event
About Us
Board of Directors
Core Team
Patrons
Scientific Committee
Scentific Advisory Board
Patient Registry
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