About the awareness ribbon

Orange is the colour for international FSHD awareness programs such as World FSHD Day which is held each year on 20 June.

We invite you to wear your awareness ribbon year round and start conversations around the importance of FSHD muscular dystrophy.

You can purchase the awareness ribbon below for $10 each (international shipping fees apply). Not only will wearing the ribbon help us raise awareness, but proceeds will help FSHD Global Research Foundation in our quest for treatments and a cure.

When you receive your order, please share a photo with your FSHD Global Orange Ribbon on social media with the hashtag#fshdglobal