World FSHD Day – June 20th

Unite to find a cure!

World FSHD Day is held on June 20th and aims to raise public awareness for FSHD. Few members of the public have never heard of Facioscapulohumeral Muscular Dystrophy, and many affected individuals don’t know that they have the condition.

FSHD one of the most common forms of muscular dystrophy and which affects over 1 million people worldwide.

This international day aims to bring awareness of this debilitating disease to the general public and decrease the misdiagnoses within the medical industry.

Within this fundraising kit you will find a range of tools and ideas to help you – help us raise awareness!

Ways to get involved!

There are a number of ways that you can get involved and help support World FSHD Day.
  • Get Digital: Running a fundraiser online is easy. See a list of ideas and ways that you can do this by downloading our fundraising kit.
  • Host an Event: Every dollar counts, so no matter how big or small your event is we’d love your support!
  • Get Social: An event might not be the ideal fundraiser for you and that’s ok, we have a bunch of social media campaigns that you can get involved in.

Run a Virtual Event

There are a range of different platforms that you can use to help create your event online:

  • Google hangouts
  • Google meets
  • Zoom Microsoft
  • Teams

To help you get inspired, here are some ideas to help you plan your virtual event. 

  • Virtual lunch or Dinner parts
  • Cocktail Night: Everyone makes their favourite cocktails
  • Facebook Trivia: Facebook have a range of different LIVE trivia groups that you can join
  • Virtual Raffle Fundraiser

Virtual Game Night

Host a virtual game night with multiplayer apps. Schedule a date a time and ask everyone to donate to take part in the game night.

Here is a list of applications and games that you can use:

  • Psych
  • Scrabble Go
  • 8 Ball Pool
  • UNO
  • Heads Up! on Houseparty
  • Yahtzee With Buddies
  • Boggle With Friends
  • Scattergories

All of these games are available through the app store and google play.

Orange Slice Selfie

Slice, smile and snap! Taking part in the Orange Slice Selfie campaign is just that simple. Though each selfie includes the classic orange slice in place of a smile, what makes each one special is what you add to it. Grab your friends, family or pets and help us to bring awareness to FSHD.

Don’t forget to include the #WorldFSHDDay hashtag in your post!

Here are some suggestions for posts:

  • On June 20, I’m raising awareness for World FSHD Day by sharing an Orange Slice Selfie! Share a photo of your Orange Slice Selfie to show your support to #WorldFSHDDay.
  • awareness to the disease, I’m sharing my Orange Slice Selfie. Join me by sharing yours or by making a donation to the @fshdglobal

Facebook Fundraiser

Create a fundraiser for yourself or someone else through Facebook on World FSHD Day. You can then share this on your personal page. with your friends and/or connect friends to your fundraiser.

People can then donate to your fundraiser in just a few clicks without leaving Facebook. This is a quick and easy way to help support World FSHD Day.

Morning or Afternoon Tea

Morning or afternoon teas are a great idea to get everyone involved. Host it at your home or work and ask your friends or colleagues to bring a plate and charge an entry fee to attend or a cold coin donation.

Casual Day or Dress Up Day

Hold a casual or dress up day (wear something orange) at your work and ask your colleagues to donate a set amount for being involved.

School Mufti Day

Get involved with your local school community by organising a school mufti or orange dress up day for a gold coin donation.

Dinner Party

Get together with your friends and family and host a dinner party. Prior to the evening you could seek donations of goods or local vouchers from your community to hold a raffle on the night.

Trivia Night

Create a trivia night with your friends or colleagues. Each guest could pay an entry fee to attend with the winner taking home some donated prizes from your community.

Know someone who hosts trivia nights? Ask the host to talk about World FSHD Day and to see donations for the evening.

Start Planning!

  1. Register your event!
    It is important you let us know about your event and become an official FSHD Global fundraiser. This way we can help promote your event and offer assistance in any way we can. Register your event by emailing us at admin@fshdglobal.org
  2. Focus on fundraising
    Although World FSHD Day’s main goal is raising awareness for the disease, we still aim to raise funds for medical research and education to ultimately find a cure for FSHD. Put a fundraising strategy in place – how much do you want to raise from your event? How will you achieve this? Raffles, gold coin donations, entry fees, guessing competitions and sales are all great ways to raise funds.
  3. Create a page
    Consider using a fundraising platform to assist in your fundraising. there is a range of different fundraising platforms you can use. GiveNow, Gofundme, EverydayHero. These are fantastic websites to help you promote your event, receive and track donations.

Promote your Event

  1. Promote your event
    Make sure everyone knows about your event with posters, email reminders and social media! We encourage you to use all social media platforms including Facebook, Twitter and Instagram to promote your event. Send us your poster, announcement or images and we’ll help promote your event on our official social media sites. If you haven’t already – follow us:
    Facebook: /FSHDGlobal
    Instagram: @fshdglobal
    Hashtag: #FSHDGlobal   and   #WorldFSHDDay
  2. Unite to find a cure
    On June 20th, we encourage every one of our supporters to change their Social Media profile pictures to a World FSHD Day logo and use the official hashtags #WorldFSHDDay.
  3. Post Event
    Ensure that you take lots of photos of your event and let us know how you went. Don’t forget to bank your funds! Ensure you deposit cash donations to your page or directly to the Foundation through our website www.fshdglobal.org/donate