The Foundation values strong governance in it’s commitment to execute world’s best practise, leadership and medical research amongst the field of FSHD. Due to a strong, dynamic and driven team, Through active fundraising and support of the wider community we are together achieving incredible advances towards clinical trials and drug developments aimed at preventing muscle wasting and improving quality of life for those living with FSHD.

FSHD Global has created a unique charity model that continuously seeks to lead, innovate and challenge the traditional structure of charities
establishing a 100% pure model driven by pure passion and determination fighting for treatments and a cure for Facioscapulohumeral Muscular
Dystrophy. When we find a cure – and we will – it won’t be because of any one single person. It will be because of all of us, working together.