8th Annual Sydney Chocolate Ball

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The Sydney Chocolate Ball is the worlds largest fundraiser for FSHD. Join us for an elegant night of everything chocolate! Hosted by Jamie Durie OAM, this extravagant night will feature world class entertainment, a chocolate inspired menu designed by celebrity chef Luke Mangan, and an abundance of champagne.

Traditionally a sold out event, ensure that you purchase your tickets today to avoid disappointment.

Tickets Information

Diamond Sponsor $25,000

3 course chocolate inspired menu with KRUG Champagne

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Platinum Sponsor $15,000

3 course chocolate inspired menu with DOM PÉRIGNON Champagne

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Gold Sponsor $10,000

3 course chocolate inspired menu with MOËT & CHANDON Champagne

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Silver Sponsor $6,000

3 course chocolate inspired menu designed by with DUPERREY Champagne

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Single Ticket $450

3 course chocolate inspired menu with DUPERREY Champagne

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Host a Corporate Event

Raising funds through your choice of event has never been more fun or simple! Your commitment to partner with us and host your own Corporate Event will help fast tracking a cure for FSHD.

We will work with you to support your event, such as a golf day, corporate luncheon, sports or office event making it easy for your employees and clients to get involved, and help raise awareness and funds towards to help improve the quality of lives of individuals and families affected by this disease.

Be inspired and enquire about partnering with us for your next event.

Contact Us


29 & 30April
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Open Gardens, Mount Wilson

Enjoy the magical autumn colours of two supreme gardens at Mount Wilson – Yengo Sculpture Garden and Dennarque Estate. Both gardens were designed in the 19th century by Charles Moore, Director of the Sydney Botanical Gardens and include many rare specimens of trees and native plants in the idyllic village setting of Mount Wilson.Don’t miss out on this a rare opportunity as these private Estates are not usually open for public viewing.


Stay up to date and educated through real life stories, speeches and seminars.


Do you have an FSHD topic or story that you’d like to share?

We share 'Progress' our monthly newsletter with our community at large. If you have a story, questions or topics of interest you’d like read about, please contact us, as we’d love to hear from you.

Send an email to media@fshdglobal.org.

FSHD Educational Toolkits


The Foundation is thrilled to release a range of educational toolkits for patients, GP's and Allied Health Professionals. Our goal is to empower our community when championing for support within the medical world.

ASX Thomson Reuters Charity Foundation Art Union 2017


Proceeds from the ASX Thomson Reuters Art Union tickets go towards supporting FSHD Global Research Foundation.

FSHD Global publishes clinical practice considerations for FSHD


In September 2015 FSHD Global convened a workshop of 13 leading international and Australian clinicians to expand on the US guidelines.(2) The guideline covers diagnosis and management of FSHD and sets out the standard of care that people with FSHD in Australia should expect from their care team.

AJ Gallagher Charity Golf Day


AJ Gallagher hosted a Charity Golf Day in October at Killara Golf Club. The generosity of players and guests saw nearly $45,000 raised to support the Monica Ellis Children's Medical Research Grant. We are so grateful for their support into our cause.

Madison Marcus Golf Tournament raises over $60,000!


On the 17th of April, FSHD Global held its first Corporate Partner Golf Day, partnering with Madison Marcus Law Firm and the Fox Hills Golf Club. The day exceeded all expectations raising over $60,000 for much needed research into the disease.