Every dollar donated supports much needed medical research to help find treatments and a cure for FSHD. We thank you for your support.

To choose what area of research your donation is allocated to, please contact the Foundation.

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As a monthly donor, your ongoing support helps advance treatments and an ultimate cure for this debilitating muscle disease affecting both adults and children. Thank you for support and making a difference to individuals and their families around the world.

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Leave a legacy that will last for generations.

By leaving a gift to the FSHD Global Research Foundation in your Will, you are ensuring that we can continue to fund world class medical breakthroughs and ultimately change the lives of future generations who suffer from this disease.

Unfortunately, only 7.5% of Australians actually include gifts to a charity in their will, and yet we are generally considered to be one of the most generous countries in the world.

For more information about bequests to FSHD Global, download our Bequest Fact Sheet, email Danielle on or call our office on (02) 8007 7037.

Bequest Fact Sheet