Do you have an FSHD topic or story that you’d like to share?

We share ‘Progress’ our monthly newsletter with our community at large. If you have a story, questions or topics of interest you’d like read about, please contact us, as we’d love to hear from you.

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306, 2021

Double Your Dollar

June 3rd, 2021|

As we move towards the end of another challenging year for the FSHD Global Research Foundation, we invite you to join in our DOUBLE YOUR DONATION campaign. This campaign provides you the opportunity to [...]

1204, 2021

2021 Muscles for Muscles Squat Challenge

April 12th, 2021|

We are proud to announce that the annual Muscles for the Muscles Squat Challenge will be held during the month of May 2021. The aim of this campaign is to build muscles for those [...]

1204, 2021

FSHD Medical Education Portal

April 12th, 2021|

Thank you to our wonderful community who have registered with our FSHD Medical Education Portal. We have received a wonderful response since launching the Portal in December 2020. The purpose of this initiative is to: Roll [...]

1204, 2021

2021 Science Information Sessions

April 12th, 2021|

Over the years, FSHD Global has hosted Science Information evenings in Sydney, Melbourne, Brisbane, Perth and even Auckland New Zealand, with the aim to educate and update our FSHD community on medical research advances [...]

1204, 2021

2020 Annual Report

April 12th, 2021|

The 2020 FSHD Global Annual Report is a valuable resource, providing information on the Foundation, our work, our community and supporters. To view the report, visit to download a copy of our online [...]

1902, 2017

FSHD Educational Toolkits

February 19th, 2017|

The Foundation is thrilled to release a range of educational toolkits for patients, GP's and Allied Health Professionals. Our goal is to empower our community when championing for support within the medical world. In September [...]


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