News & Media

Signature Events

Do you have an
FSHD topic or story
that you’d like to share?

We share ‘Progress’ our monthly newsletter with our community at large. If you have a story, questions or topics of interest you’d like read about, please contact us, as we’d love to hear from you.

Send an email to admin@fshdglobal.org.

Science Information Sessions

2020 Annual Report

The 2020 FSHD Global Annual Report is a valuable resource, providing information on the Foundation, our work, our community and

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