NEWS & MEDIA
Do you have an FSHD topic or story that you’d like to share?
We share ‘Progress’ our monthly newsletter with our community at large. If you have a story, questions or topics of interest you’d like read about, please contact us, as we’d love to hear from you.
Send an email to hayley@fshdglobal.org.
FSHD Global _ February Newsletter
Merry Christmas and A Happy New Year
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2017 Autumn Print Newsletter
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June 2015 Newsletter
Double Your Dollar
As we move towards the end of another challenging year for the FSHD Global Research Foundation, we invite you to join in our DOUBLE YOUR DONATION campaign. This campaign provides you the opportunity to [...]
2021 Muscles for Muscles Squat Challenge
We are proud to announce that the annual Muscles for the Muscles Squat Challenge will be held during the month of May 2021. The aim of this campaign is to build muscles for those [...]
FSHD Medical Education Portal
Thank you to our wonderful community who have registered with our FSHD Medical Education Portal. We have received a wonderful response since launching the Portal in December 2020. The purpose of this initiative is to: Roll [...]
2021 Science Information Sessions
Over the years, FSHD Global has hosted Science Information evenings in Sydney, Melbourne, Brisbane, Perth and even Auckland New Zealand, with the aim to educate and update our FSHD community on medical research advances [...]
2020 Annual Report
The 2020 FSHD Global Annual Report is a valuable resource, providing information on the Foundation, our work, our community and supporters. To view the report, visit https://fshdglobal.org/annual-reports to download a copy of our online [...]
FSHD Global publishes clinical practice considerations for FSHD
Clinical practice guidelines are an important part of clinical practice for many health professionals. Health professionals need to know about, understand and critically appraise new evidence as it becomes available. The problem facing many [...]
FSHD Educational Toolkits
The Foundation is thrilled to release a range of educational toolkits for patients, GP's and Allied Health Professionals. Our goal is to empower our community when championing for support within the medical world. In September [...]