BOARD OF DIRECTORS

2022-12-21T15:36:20+10:00

Dr Gina Ravenscroft

Group Leader of the Rare Disease Genetics and Functional Genomics group
Dr Gina Ravenscroft is a Senior Research Fellow at the University of Western Australia and Group..
2023-01-30T15:44:15+10:00

Natalie Cooney

Chairperson
Natalie Cooney is an entrepreneurial philanthropist at heart. Having grown up with FSHD ....
2022-11-22T14:50:10+10:00

Emma Weatherley

Managing Director
After her diagnosis of FSHD in her early 30’s, Emma’s desire to understand her condition led ...
2020-01-15T15:33:31+10:00

Emma Weatherley

I’m the first person in my family diagnosed with FSHD. Looking back, I had symptoms in my ....

2022-11-21T16:21:22+10:00

Alison Hearne

Operations Manager
Alison has volunteered for the Foundation for many years, ....