Natalie Cooney

Chairperson

Natalie has been part of the Foundation’s heart and soul since it’s establishment in 2007, becoming Chair in 2021. Natalie’s infectious passion, professionalism and expertise in the field is unmatched. In addition to her corporate life, Natalie sits on multiple global science advisory and biotech boards and is actively driving forward the global scientific strategy for FSHD. She is a devoted leader and daughter to Bill Moss AO, Founder and Patron of FSHD Global Research Foundation.