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So far FSHD Global has created 59 blog entries.

WYNDHAM DESTINATIONS CORPORATE SURF CHALLENGE 2018

Wyndham Destinations Corporate Surf Challenge “The Wyndham Destinations Corporate Surf Challenge is a great way for industry leaders to inspire and engage staff for an important cause. I encourage you to get on board and join us at this wonderful, fun-filled event to support the FSHD Global Research Foundation [...]

WYNDHAM DESTINATIONS CORPORATE SURF CHALLENGE 20182019-10-02T18:12:47+10:00

“BILL MOSS THE SINGLE-MINDED BIOTECH AND A SEARCH FOR A CURE” – THE AUSTRALIAN

By Sarah-Jane Tasker - 26th of May 2018 Bill Moss can see the words to the final chapter of his next book, and it’s about something that will not only change his life but the lives of millions of people around the globe: a cure for muscle-wasting disease FSHD. The [...]

“BILL MOSS THE SINGLE-MINDED BIOTECH AND A SEARCH FOR A CURE” – THE AUSTRALIAN2019-10-02T18:12:47+10:00

GRANT APPLICATIONS – NOW OPEN

3D Muscle Printing Biotech Tender The Foundation, in the capacity of founding investor, would like to provide seed capital towards the establishment of an early stage biotech company which would be directed at the development of technology to build new muscle tissue suitable for transplant into FSHD sufferers specifically, [...]

GRANT APPLICATIONS – NOW OPEN2019-10-02T18:12:47+10:00

START THE NEW YEAR WITH A SPLASH WITH OUR NEW CEO KATE

Join us in the Cole Classic 1km Swim this February! Join our new CEO Kate as she takes to the seas with a team of FSHD champions to raise funds for FSHD Global on 4th February 2018 at the Cole Classic Ocean Swim at Manly. As the perfect ocean swim [...]

START THE NEW YEAR WITH A SPLASH WITH OUR NEW CEO KATE2019-10-02T18:12:47+10:00

A BLOG BY TRACEY JACKSON

International Day of People with a Disability 3 December 2017 Let me start by saying …. Let’s all celebrate International Day of People with a Disability. Inclusion is vital for our wellbeing so let’s make this world a more inclusive place for all those with a disability. My name [...]

A BLOG BY TRACEY JACKSON2019-10-02T18:12:47+10:00

FSHD-LEEP PROGAM

FACIOSCAPULOHUMERAL DYSTROPHY LIFESTYLE EDUCATION & EXERCISE PROGRAM (FSHD-LEEP) The FSHD-LEEP program: A collaboration between the University of Canberra and Capital Region Muscular Dystrophy is offering you the opportunity to become a part of a program aimed at highlighting the benefits of exercise and healthy living to people with FSHD. The [...]

FSHD-LEEP PROGAM2019-10-02T18:12:48+10:00

SHOW YOUR SUPPORT FOR FSHD GLOBAL RESEARCH FOUNDATION

2017 Charity of the Year in the Australian Charity awards FSHD Global has recently been named 2017 Charity of the Year in the Australian Charity Awards. This fantastic achievement highlights the calibre of the Foundation and recognises our innovation, transparency and commitment to funding world’s best medical research and [...]

SHOW YOUR SUPPORT FOR FSHD GLOBAL RESEARCH FOUNDATION2019-10-02T18:12:48+10:00

BILL MOSS AO ON THE ALAN JONES BREAKFAST SHOW

Chairman Bill Moss AO talks with Alan Jones as the Foundation is announced as the Charity of the Year in the Australian Charity Awards 2017 Alan Jones: I often say it’s important to give credit where it’s due. There are a million charities these days, and it’s important to [...]

BILL MOSS AO ON THE ALAN JONES BREAKFAST SHOW2019-10-02T18:12:48+10:00

2017 CHARITY OF THE YEAR!

CHARITY OF THE YEAR ANNOUNCED AT THE AUSTRALIAN CHARITY AWARDS 2017 FSHD Global Research Foundation has been recognised as Charity of the Year (CHY) in The Australian Charity Awards 2017. Now in their fifth year, The Australian Charity Awards are a partner program of The Australian Business Awards and have [...]

2017 CHARITY OF THE YEAR!2019-10-02T18:12:48+10:00

FSHD Global publishes clinical practice considerations for FSHD

Clinical practice guidelines are an important part of clinical practice for many health professionals. Health professionals need to know about, understand and critically appraise new evidence as it becomes available. The problem facing many health professionals is the pace at which new evidence is generated. It’s estimated that 2.5 [...]

FSHD Global publishes clinical practice considerations for FSHD2019-10-02T18:12:48+10:00

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