Wyndham Destinations Corporate Surf Challenge “The Wyndham Destinations Corporate Surf Challenge is a great way for industry leaders to inspire and engage staff for an important cause. I encourage you to get on board and join us at this wonderful, fun-filled event to support the FSHD Global Research Foundation [...]
By Sarah-Jane Tasker - 26th of May 2018 Bill Moss can see the words to the final chapter of his next book, and it’s about something that will not only change his life but the lives of millions of people around the globe: a cure for muscle-wasting disease FSHD. The [...]
3D Muscle Printing Biotech Tender The Foundation, in the capacity of founding investor, would like to provide seed capital towards the establishment of an early stage biotech company which would be directed at the development of technology to build new muscle tissue suitable for transplant into FSHD sufferers specifically, [...]
Join us in the Cole Classic 1km Swim this February! Join our new CEO Kate as she takes to the seas with a team of FSHD champions to raise funds for FSHD Global on 4th February 2018 at the Cole Classic Ocean Swim at Manly. As the perfect ocean swim [...]
International Day of People with a Disability 3 December 2017 Let me start by saying …. Let’s all celebrate International Day of People with a Disability. Inclusion is vital for our wellbeing so let’s make this world a more inclusive place for all those with a disability. My name [...]
FACIOSCAPULOHUMERAL DYSTROPHY LIFESTYLE EDUCATION & EXERCISE PROGRAM (FSHD-LEEP) The FSHD-LEEP program: A collaboration between the University of Canberra and Capital Region Muscular Dystrophy is offering you the opportunity to become a part of a program aimed at highlighting the benefits of exercise and healthy living to people with FSHD. The [...]
2017 Charity of the Year in the Australian Charity awards FSHD Global has recently been named 2017 Charity of the Year in the Australian Charity Awards. This fantastic achievement highlights the calibre of the Foundation and recognises our innovation, transparency and commitment to funding world’s best medical research and [...]
Chairman Bill Moss AO talks with Alan Jones as the Foundation is announced as the Charity of the Year in the Australian Charity Awards 2017 Alan Jones: I often say it’s important to give credit where it’s due. There are a million charities these days, and it’s important to [...]
CHARITY OF THE YEAR ANNOUNCED AT THE AUSTRALIAN CHARITY AWARDS 2017 FSHD Global Research Foundation has been recognised as Charity of the Year (CHY) in The Australian Charity Awards 2017. Now in their fifth year, The Australian Charity Awards are a partner program of The Australian Business Awards and have [...]
Clinical practice guidelines are an important part of clinical practice for many health professionals. Health professionals need to know about, understand and critically appraise new evidence as it becomes available. The problem facing many health professionals is the pace at which new evidence is generated. It’s estimated that 2.5 [...]