FSHD Global Research Foundation has been recognised as Charity of the Year (CHY) in The Australian Charity Awards 2017. Now in their fifth year, The Australian Charity Awards are a partner program of The Australian Business Awards and have been established to identify, recognise and reward organisations for the exceptional work undertaken through their charitable initiatives.

“We are honoured to be recognised as the Australian Charity of the Year. This fantastic achievement highlights the calibre of the FSHD Global Research Foundation and recognises our innovation, transparency and commitment to funding world’s best medical research and education of FSH muscular dystrophy on a global scale.

Being praised for our 100% donor model, which sees every tax deductible dollar directed towards research, shed’s light on the importance of transparency and accountability within the not for profit sector. Pairing today’s technology with traditional modes of philanthropy gives the donor journey a stronger sense of impact and satisfaction, as we strive towards an ultimate cure, “said FSHD Global Research Foundation, Natalie Moss, Managing Director said.

This prestigious accolade will act as a tool for the Foundation to obtain exposure, recognition and acknowledgement for our distinctive & innovative 100% charity model on a prominent and far-reaching scale. This will also provide a platform to increase the general public awareness for this genetic disease.

FSHD Global Research Foundation is honoured and humbled to be awarded this award. As a small organisation built on a strong culture of pure passion and determination, we rely on the generosity, time and expertise of our community to continue to excel. We are fortunate to have an incredible support network made possible by our non-remunerated Board of Directors, Patrons, Ambassadors, staff and volunteers. This award is a testament to all of our supporters who have given their time and money to us with the confidence we will remain driven and accountable in our quest to find treatments and a cure for Facioscapulohumeral muscular dystrophy (FSHD).

“Today, charitable organisations are facing ongoing challenges in their operating environment. Measuring the performance and impact of their initiatives has become an important part of operations for the third sector,” Australian Charity Awards Program Director, Ms Tara Johnston, said.

“In this context, the sustainability of charities depends more than ever on their performance management and their ability to innovate. Being innovative has the potential to elevate charitable organisations in their efforts to achieve a long-term social impact and financial sustainability.

“The Australian Charity Awards 2017 are proud to acknowledge the role of charitable organisations in Australia and commend FSHD Global Research Foundation for being recognised as Charity of the Year,” Ms Johnston added.

About the Awards
The Australian Charity Awards provide organisations with the opportunity to raise the awareness of their important causes by having their projects, initiatives, contributions and achievements recognised through a national recognition program. The program is open to charitable organisations including charitable funds and charitable institutions operating in Australia. Charitable institutions include Public Benevolent Institutions and Health Promotion Charities.
Entrants are required to demonstrate the execution of innovative, well-managed, high-performing charitable initiatives. The World Business Awards Framework is utilised as a structured model of assessment that enables the participating organisations to be benchmarked against world class performance standards.
The Australian Charity Award for Outstanding Achievement (OAA) culminating in an overall winner for Charity of the Year (CHY) honour the dedication and achievements of charitable organisations and the measurable impact of their initiatives. Initiatives can include but are not limited to projects, programs, processes, services, systems, technologies, developments, ventures and undertakings.

For more information on The Australian Charity Awards and the 2017 Winners go to

For further information or comment, contact:
Natalie Moss Managing Director FSHD Global Research Foundation 0404 869 902