I’m 10 years old and I want to tell you what living with FSHD is like for me. How FSHD affects me every day FSHD affects me every day. It stops me having a normal day like everyone else by giving me pains in my shoulders, neck and legs [...]
Join our team and start fundraising! City2Surf will be held on Sunday, August 13, 2017. It highlights the importance of muscles in our bodies. It encourages people of the public to fundraise for a great cause and gets them active and using their muscles to participate in an amazing day [...]
Join our team and start fundraising! City2Surf will be held on Sunday, August 13, 2017. It highlights the importance of muscles in our bodies. It encourages people of the public to fundraise for a great cause and gets them active and using their muscles to participate in an amazing day [...]
Get planning for this June 20 World FSHD Day is held on June 20 and aims to raise public awareness for FSHD. Few members of the public have ever heard of FSHD, and many affected individuals don’t know that they have the condition. This international day aims to bring awareness of [...]
FSHD Global Research Grant 23 Update In a first for the FSHD field, a study has been published looking closely at the morbidity of low bone density and bone fracture risk in patients suffering from FSHD. The FSHD Global Foundation played a particularly proactive role in supporting this study beyond [...]
We are a proud charity partner of Australian Opal Cutters & Peal Divers. This year, we officially welcome Australian Opal Cutters & Pearl Divers as a Corporate Partner of the Foundation. This family run business has been a supporter of the Foundation for a number of years and is [...]
Get Positive - A piece by FSHD Patron Justin Reid You hear it a lot. “Just stay positive.” It’s definitely good advice but sometimes I feel like yelling in their face,”Well OBVIOUSLY !!!”. If it was easy, if I could just flick a switch and be positive I’d do [...]
FSHD Global is proud to be hosting an open garden this April 29 & 30. Enjoy the magical autumn colours of two supreme gardens at Mount Wilson – Yengo Sculpture Garden and Dennarque Estate. Both gardens were designed in the 19th century by Charles Moore, Director of the Sydney Botanical Gardens and [...]
Cape York Native Title Holders Partner with Corporate Australia to Establish Economic Empowerment FSHD Global is proud to be involved in a partnership between Boston Indigenous Leisure and Tourism and the Gudang-Yadhaykenu clan. Boston Indigenous Leisure & Tourism is an Australian based Investment House specialising in creating socially responsible [...]
The Foundation is thrilled to release a range of educational toolkits for patients, GP's and Allied Health Professionals. Our goal is to empower our community when championing for support within the medical world. In September 2015 FSHD Global convened a workshop of 13 leading international and Australian clinicians to develop [...]