The Latest Study The role of exercise in muscular dystrophy has long been controversial and advice has oscillated from promoting exercise to counselling people with muscular dystrophy to avoid it entirely. A recent review of the available evidence concluded that exercise was not harmful for people with FSHD, but was unable [...]
FSHD Global has been recognised as a Winner for Outstanding Achievement in the Australian Charity Awards 2016. We are thrilled to be recognised as a Winner for Outstanding Achievement in the 2016 Australian Charity Awards. This incredible award recognises FSHD Global’s commitment to addressing medical research into Facioscapulohumeral Muscular [...]
Lavender Blues Harsh reflections and hindsight plainly revealed now how my recent twilight nightmare of an accident was such a scary but avoidable experience and one I could very well have done with-out. This dicey state of affairs occurred when I endeavored to lean over and retrieve a pair [...]
New drug targets FSHD is a progressive muscle wasting disease caused by a genetic mutation on chromosome 4 where a reduction in the number of repeated units in what is called the D4Z4 region, or mutations in a gene called SMCHD1, leads to the expression of a toxic gene [...]
FSHD: It's not just about muscles. For people with FSHD it will come as no surprise that this condition effects more than just muscles. Progressive muscle weakness leads to massive changes in the way people live their lives impacting how they get around, how they complete daily activities, whether [...]