Les Jones (VIC)

Les is a self-employed consultant who has been working in the financial services industry for the past 28 years. Having a general interest in all good sports; predominantly football, cricket and horse racing, his physical activities are now limited to swimming, which he has done regularly for the past 20 years. Les’s FSHD has dramatically affected his life and the lives of his family.

Les is married to the gorgeous Claire. They have three beautiful sons, one a sufferer, Kristian, who is no longer with us as a result of FSHD, and three grandchildren, all negative to FSHD. The commencement of the Foundation was one of the happiest and saddest days of my life. Happiest because it represented the shining of a torch at the start of a dark tunnel, and saddest because it hadn’t happened two years earlier, and given our son the hope and strength to continue his eternal struggle with FSHD.

Les is dedicated to helping the Foundation strive to find a treatment and cure for FSHD. He is one of the driving forces behind the Victorian branch activities, in particular the highly successful Melbourne Chocolate Ball. He is currently the vice president of the Victorian branch, and also an active member of Rotary, Essendon North branch.