FSHD Global continues to dramatically advance the global footprint of FSHD by increasing funds distributed to medical research, investment and education on a global stage. The Foundation funds each grant to full term (ranging from 1 – 3 years) with medical research distributions released when agreed scientific milestones are reached.

Traditionally, 100% of all cash tax deductible donations are allocated to current or future medical research investment, grants and educations. The Foundations operating expenses are covered by other non-tax deductible fundraising activities such as sponsorship, events, campaigns and auctions. As a result of COVID-19 and the cancellation of the 2020 Sydney Chocolate Ball, our operating model for the 2020 financial year sits at 90%.