Inception – 2019: As of 30th June

$10,778,335 Total Tax Deductible Donations

A 100% MODEL

FSHD Global continues to dramatically advance the global footprint of FSHD by increasing funds distributed to medical research, investment and education on a global stage. The Foundation funds each grant to full term (ranging from 1 – 3 years) with medical research distributions released when agreed scientific milestones are reached.

As part of our 100% model, the Foundation’s operating expenses are covered by other non-tax Deductible fundraising activities such as sponsorships and auctions. It is through such transparency, accountability, good governance and pure passion we seek to find a cure for FSHD as quickly as possible.