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BONE HEALTH IN FSHD
FSHD Global Research Grant 23 Update In a first for the FSHD field, a study has been published looking closely at the morbidity of low bone density and bone fracture risk in patients suffering from FSHD. The FSHD Global Foundation played a particularly proactive role in supporting this study beyond [...]
OUR NEWEST PARTNERSHIP: AUSTRALIAN OPAL CUTTERS & PEARL DIVERS
We are a proud charity partner of Australian Opal Cutters & Peal Divers. This year, we officially welcome Australian Opal Cutters & Pearl Divers as a Corporate Partner of the Foundation. This family run business has been a supporter of the Foundation for a number of years and is [...]
GET POSITIVE
Get Positive - A piece by FSHD Patron Justin Reid You hear it a lot. “Just stay positive.” It’s definitely good advice but sometimes I feel like yelling in their face,”Well OBVIOUSLY !!!”. If it was easy, if I could just flick a switch and be positive I’d do [...]
OPEN GARDENS – MOUNT WILSON
FSHD Global is proud to be hosting an open garden this April 29 & 30. Enjoy the magical autumn colours of two supreme gardens at Mount Wilson – Yengo Sculpture Garden and Dennarque Estate. Both gardens were designed in the 19th century by Charles Moore, Director of the Sydney Botanical Gardens and [...]
FSHD GLOBAL PROUD TO BE INVOLVED IN UNIQUE ETHICAL PARTNERSHIP
Cape York Native Title Holders Partner with Corporate Australia to Establish Economic Empowerment FSHD Global is proud to be involved in a partnership between Boston Indigenous Leisure and Tourism and the Gudang-Yadhaykenu clan. Boston Indigenous Leisure & Tourism is an Australian based Investment House specialising in creating socially responsible [...]
FSHD EDUCATIONAL TOOLKITS
Getting the support you and your health professionals need The Foundation is thrilled to release a range of educational toolkits for patients, GP’s and Allied Health Professionals. Our goal is to empower our community when championing for support within the medical world. In September 2015 FSHD Global convened a workshop [...]