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“BILL MOSS THE SINGLE-MINDED BIOTECH AND A SEARCH FOR A CURE” – THE AUSTRALIAN
By Sarah-Jane Tasker - 26th of May 2018 Bill Moss can see the words to the final chapter of his next book, and it’s about something that will not only change his life but the lives of millions of people around the globe: a cure for muscle-wasting disease FSHD. The [...]
GRANT APPLICATIONS – NOW OPEN
3D Muscle Printing Biotech Tender The Foundation, in the capacity of founding investor, would like to provide seed capital towards the establishment of an early stage biotech company which would be directed at the development of technology to build new muscle tissue suitable for transplant into FSHD sufferers specifically, [...]
START THE NEW YEAR WITH A SPLASH WITH OUR NEW CEO KATE
Join us in the Cole Classic 1km Swim this February! Join our new CEO Kate as she takes to the seas with a team of FSHD champions to raise funds for FSHD Global on 4th February 2018 at the Cole Classic Ocean Swim at Manly. As the perfect ocean swim [...]
A BLOG BY TRACEY JACKSON
International Day of People with a Disability 3 December 2017 Let me start by saying …. Let’s all celebrate International Day of People with a Disability. Inclusion is vital for our wellbeing so let’s make this world a more inclusive place for all those with a disability. My name [...]
FSHD-LEEP PROGAM
FACIOSCAPULOHUMERAL DYSTROPHY LIFESTYLE EDUCATION & EXERCISE PROGRAM (FSHD-LEEP) The FSHD-LEEP program: A collaboration between the University of Canberra and Capital Region Muscular Dystrophy is offering you the opportunity to become a part of a program aimed at highlighting the benefits of exercise and healthy living to people with FSHD. The [...]
SHOW YOUR SUPPORT FOR FSHD GLOBAL RESEARCH FOUNDATION
2017 Charity of the Year in the Australian Charity awards FSHD Global has recently been named 2017 Charity of the Year in the Australian Charity Awards. This fantastic achievement highlights the calibre of the Foundation and recognises our innovation, transparency and commitment to funding world’s best medical research and [...]