A family perspective - A cure for FSHD would mean Hannah and I can run on a beach together. She could dance and twirl till her heart is content. I hope that one day, she can. Many people in the FSHD community may remember the story of my life [...]
Donate to the FSHD Global Christmas Appeal to help find a Cure! Hi, my name is Heather, I am 57 years old. I have 4 children and 7 grandchildren. I was diagnosed with FSHD 7 years ago. As far as I know, I am the only one in my [...]
Shane’s Christmas wish is to find a cure for FSHD so that his grandchildren never have to live with this insidious disease This is Shane’s Story….. My name is Shane and this is my story. I have just turned 51 years old and I have FSHD. I was first [...]
Tania is our proud NSW State Branch President, FSHD Global Ambassador & Community Liaison and Administration Assistant. She is full of warmth, positivity and laughter despite going through a tough 12 months. This is Tania’s Story… I was diagnosed with FSHD when I was 12, but I’ve had the symptoms [...]
Save the date! If you would like to attend our 10th Annual Sydney Chocolate Ball in 2019 please contact the FSHD Global team at events@fshdglobal.org for more information!
Wyndham Destinations Corporate Surf Challenge “The Wyndham Destinations Corporate Surf Challenge is a great way for industry leaders to inspire and engage staff for an important cause. I encourage you to get on board and join us at this wonderful, fun-filled event to support the FSHD Global Research Foundation [...]
By Sarah-Jane Tasker - 26th of May 2018 Bill Moss can see the words to the final chapter of his next book, and it’s about something that will not only change his life but the lives of millions of people around the globe: a cure for muscle-wasting disease FSHD. The [...]
FSHD stem cells: revolutionising research A human cell model of facioscapulohumeral dystrophy provides valuable insight into this condition and an essential tool for drug discovery. One of the most important tools for biomedical research is the existence of cell and animal models that closely resemble the human condition being [...]