Project Description

Tania Spagnolini

Community Liaison Officer

Tania has a background in hospitality and catering and is currently working for FSHD Global. She is also raising her daughter, Francesca and simultaneously grappling with the degenerative effects of her own FSHD. She remains optimistic for finding a cure and has been a volunteer for several years for FSHD Global, focussing primarily on fund raising activities.