World first AI Model to predict FSHD Disease Progression published
Predicting progression in FSHD is now possible thanks to a model powered by AI that accurately predicts progression on an
July 17, 2025
News & Media
Discover what’s new
in FSHD research and
the community
Stay connected with the latest developments in FSHD research and community progress. This is your trusted hub for updates on scientific breakthroughs, inspiring personal stories, and the work we’re doing globally to accelerate treatments and a cure for Facioscapulohumeral Muscular Dystrophy (FSHD).
By staying informed and engaged, you’re helping us raise awareness, support individuals and families impacted by FSHD, and drive real momentum toward lasting solutions.
2025 International Research Congress, Amsterdam
Our Managing Director, Emma Weatherley presented at the 32nd Annual International Research Congress in Amsterdam alongside renowned clinician, Nicol Voermans
June 14, 2025
Muscles For Muscles Challenge 2025
From 1–10 May, our community came together with purpose and passion to raise awareness and funds for facioscapulohumeral muscular dystrophy
May 10, 2025
‘Cure FSHD’ Webinar
‘Cure FSHD’ has been designed for and with individuals living with Facioscapulohumeral Muscular Dystrophy (FSHD). Cure FSHD is more than
March 12, 2025
Parliamentary Friends of FSHD 2025 — launch of ‘Cure FSHD’
On Wednesday, February 12th, we held the fourth Parliamentary Friends of FSHD event, co-chaired by Dr. Mike Freelander MP and
February 12, 2025
2020 Annual Report
The 2020 FSHD Global Annual Report is a valuable resource, providing information on the Foundation, our work, our community and
April 12, 2021
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