FSHD Global is a multi-award winning Foundation that has significantly advanced global research into muscle wellness, muscle technology and drug discovery, to advance clinical trials for FSHD.
We fund medical research, invest into biotech and progress the pathway for clinical trials to fast track disease modifying therapies.
We are focussed on slowing the progression of FSHD and improving quality of life through investment in muscle wellness and technologies. FSHD Global Research Foundation is bigger than one disease – we are creating a better future for muscles for everyone.
Through patient and medical advocacy we build diagnostic and medical infrastructure to support therapeutic development and patient access to future approved therapies.
Find out how FSHD Global is collaborating with the biotechnology industry to help develop the treatments of the future.
Learn about the active and completed grants for finding a cure and muscle regeneration.
Learn about clinical trials, and what you need to consider before taking part in a trial.
Information for scientists interested in applying for research funding.
We’ve provided a glossary to help you make sense of medical research and understand FSHD better.
Our innovative patient-led registry for FSHD enables Australians living with FSHD to obtain their ‘Clinical Trial Passport’, guiding you through the steps to complete all diagnostic testing and questionnaires required to join our community of trial ready patients and contribute to groundbreaking research. Cure FSHD is proudly part of the Treat NMD global registry framework.
To join the registry, download the Cure FSHD app today.
Connect with us
Subscribe to our Newsletter
How You Can Help
Help the cause by donating to the foundation today.
