Neuromuscular Disease Webinar
FSHD Global was pleased to join Muscular Dystrophy Queensland for a webinar covering the latest developments in FSHD research and
May 29, 2026
News & Media
Discover what’s new
in FSHD research and
the community
Stay connected with the latest developments in FSHD research and community progress. This is your trusted hub for updates on scientific breakthroughs, inspiring personal stories, and the work we’re doing globally to accelerate treatments and a cure for Facioscapulohumeral Muscular Dystrophy (FSHD).
By staying informed and engaged, you’re helping us raise awareness, support individuals and families impacted by FSHD, and drive real momentum toward lasting solutions.
Whole-Body MRI in FSHD: Review and Future Directions
A review of the pioneering research that uses MRI scans and AI to enable clinical trials for FSH muscular dystrophy and other neuromuscular conditions.
May 27, 2026
A moment worth celebrating – the release of the interim report from Project Mercury
Project Mercury was established in 2023 to address critical challenges for clinical trials – ensuring safe and effective treatments reach patients quickly, equitably, and at scale.
May 25, 2026
Letter to the FSHD Community from Sarepta
26 March 2026 We welcome the announcement from Sarepta Therapeutics on early clinical data from its siRNA program targeting FSHD.
March 26, 2026
Letter to the FSHD Community from Roche
19 March 2026 Overnight, Roche has shared with the FSHD community that it will discontinue its Phase II MANOEUVRE trial
March 20, 2026
FSHD Global Partners with Leading Paediatric Institutions to Advance Research for Children
August 2025 FSHD Global Research Foundation recently visited the Murdoch Children’s Research Institute (MCRI) and The Royal Children’s Hospital to
September 26, 2025
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FSHD topic or story
that you’d like to share?
We publish a monthly newsletter to keep the FSHD community informed, connected, and inspired. If there’s a story you’d like to tell, a question you’d like answered, or a topic you think we should explore, we’d love to hear from you.
Send an email to admin@fshdglobal.org.