AusBiz Feature on Sydney Chocolate Ball
More than chocolate: Sydney’s sweetest night brings hope to families living with FSHD Behind the glamour of Sydney’s Chocolate Ball
October 30, 2026
News & Media
Discover what’s new
in FSHD research and
the community
Stay connected with the latest developments in FSHD research and community progress. This is your trusted hub for updates on scientific breakthroughs, inspiring personal stories, and the work we’re doing globally to accelerate treatments and a cure for Facioscapulohumeral Muscular Dystrophy (FSHD).
By staying informed and engaged, you’re helping us raise awareness, support individuals and families impacted by FSHD, and drive real momentum toward lasting solutions.
FSHD Global is helping more people around the world get a diagnosis
30 October 2026 FSHD Global is helping more people around the world get a diagnosis, regardless of where they live
October 30, 2026
FSHD Global joins landmark international collaboration to accelerate FSHD treatments
FSHD Global commits more than $800,000 to a global effort to develop faster, smarter and less invasive clinical trials for people living with FSHD
October 13, 2026
Bulldogs and FSHD Global Research Foundation launch Australia’s biggest September Squat Challenge at NRL blockbuster
Official Match Day Partnership to inspire packed Accor stadium to ‘Use Your Muscles for Those Who Can’t’ FSHD Global
September 9, 2026
An update on FSHD genetic testing
FSHD1 TESTING, PATHWEST LABORATORY MEDICINE WA PathWest has been undertaking assay testing for FSHD1 since 2022, following thegenerous donation of
September 9, 2026
Funding for Armatus Bio Precision miRNA Therapy
ARM-201 has completed preclinical studies and successful pre-IND engagement with the U.S. Food and Drug Administration (FDA) and has received both Orphan Drug and Rare Paediatric Disease designations. They are now scaling for clinical studies.
August 19, 2026
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We publish a monthly newsletter to keep the FSHD community informed, connected, and inspired. If there’s a story you’d like to tell, a question you’d like answered, or a topic you think we should explore, we’d love to hear from you.
Send an email to admin@fshdglobal.org.