Epicrispr positive trial and first use of AI twin
Epicrispr trial using Springbok AI twin shows positive clinical evidence of increased lean muscle, including results from an Australian site
June 27, 2026
News & Media
Discover what’s new
in FSHD research and
the community
Stay connected with the latest developments in FSHD research and community progress. This is your trusted hub for updates on scientific breakthroughs, inspiring personal stories, and the work we’re doing globally to accelerate treatments and a cure for Facioscapulohumeral Muscular Dystrophy (FSHD).
By staying informed and engaged, you’re helping us raise awareness, support individuals and families impacted by FSHD, and drive real momentum toward lasting solutions.
New test for FSHD muscular dystrophy sends diagnosis skyrocketing
This method improves sensitivity and helps broaden the definition of genetic FSHD to more accurately correspond to clinical FSHD, allowing identification of those at risk in affected families and in large population studies.
June 19, 2026
New RNA therapeutic progressing to Phase III trials
Encouraging news from the Avidity/Novartis trial using targeted siRNA to suppress DUX4 in FSHD. The therapy, del-brax, is an investigational
June 15, 2026
Neuromuscular Disease Webinar
FSHD Global was pleased to join Muscular Dystrophy Queensland for a webinar covering the latest developments in FSHD research and
May 29, 2026
Whole-Body MRI in FSHD: Review and Future Directions
A review of the pioneering research that uses MRI scans and AI to enable clinical trials for FSH muscular dystrophy and other neuromuscular conditions.
May 27, 2026
A moment worth celebrating – the release of the interim report from Project Mercury
Project Mercury was established in 2023 to address critical challenges for clinical trials – ensuring safe and effective treatments reach patients quickly, equitably, and at scale.
May 25, 2026
Do you have an
FSHD topic or story
that you’d like to share?
We publish a monthly newsletter to keep the FSHD community informed, connected, and inspired. If there’s a story you’d like to tell, a question you’d like answered, or a topic you think we should explore, we’d love to hear from you.
Send an email to admin@fshdglobal.org.