Stay connected with the latest developments in FSHD research and community progress. This is your trusted hub for updates on scientific breakthroughs, inspiring personal stories, and the work we’re doing globally to accelerate treatments and a cure for Facioscapulohumeral Muscular Dystrophy (FSHD).
By staying informed and engaged, you’re helping us raise awareness, support individuals and families impacted by FSHD, and drive real momentum toward lasting solutions.
August 2025 FSHD Global Research Foundation recently visited the Murdoch Children’s Research Institute (MCRI) and The Royal Children’s Hospital to
On September 15th, the Sydney FSHD community gathered for an unforgettable evening of connection and discovery. Generously hosted by UBS,
Patients with a common type of muscular dystrophy a world-first AI powered disease progression model with ‘life-changing’ implications, using advanced
By Mitch Albert Boccia is a dynamic and inclusive Paralympic sport designed specifically for people with physical disabilities. It offers
Last week’s Melbourne Community Update Meeting was a resounding success, bringing together over 50 community members for an inspiring evening
Historic First: EPI-321 Becomes First Therapy to Target FSHD’s Root Cause A milestone moment for FSHD occurred on 6th August
We publish a monthly newsletter to keep the FSHD community informed, connected, and inspired. If there’s a story you’d like to tell, a question you’d like answered, or a topic you think we should explore, we’d love to hear from you.
Send an email to admin@fshdglobal.org.
