Stay connected with the latest developments in FSHD research and community progress. This is your trusted hub for updates on scientific breakthroughs, inspiring personal stories, and the work we’re doing globally to accelerate treatments and a cure for Facioscapulohumeral Muscular Dystrophy (FSHD).
By staying informed and engaged, you’re helping us raise awareness, support individuals and families impacted by FSHD, and drive real momentum toward lasting solutions.
Last week’s Melbourne Community Update Meeting was a resounding success, bringing together over 50 community members for an inspiring evening
Historic First: EPI-321 Becomes First Therapy to Target FSHD’s Root Cause A milestone moment for FSHD occurred on 6th August
We are proud to announce that our CEO and Managing Director, Emma Weatherley, has been recognised with the 2025 HESTA
The 2025 International Research Congress on FSHD, held 12–13 June in Amsterdam and online, brought together more than 250 researchers,
By Mitch Albert Wheelchair Hockey is a fast-paced, competitive 5-a-side team sport played by athletes with a wide range of
Tireless Muscular Dystrophy advocate and trailblazer named as finalist in 2025 HESTA Excellence Awards Managing Director of the FSHD Global
We publish a monthly newsletter to keep the FSHD community informed, connected, and inspired. If there’s a story you’d like to tell, a question you’d like answered, or a topic you think we should explore, we’d love to hear from you.
Send an email to admin@fshdglobal.org.
