FSHD-LEEP PROGAM

FACIOSCAPULOHUMERAL DYSTROPHY LIFESTYLE EDUCATION & EXERCISE PROGRAM (FSHD-LEEP) The FSHD-LEEP program: A collaboration between the University of Canberra and Capital Region Muscular Dystrophy is offering you the opportunity to become a part of a program aimed at highlighting the benefits of exercise and healthy living to people with FSHD. The [...]

FSHD-LEEP PROGAM2019-10-02T18:12:48+10:00

SHOW YOUR SUPPORT FOR FSHD GLOBAL RESEARCH FOUNDATION

2017 Charity of the Year in the Australian Charity awards FSHD Global has recently been named 2017 Charity of the Year in the Australian Charity Awards. This fantastic achievement highlights the calibre of the Foundation and recognises our innovation, transparency and commitment to funding world’s best medical research and [...]

SHOW YOUR SUPPORT FOR FSHD GLOBAL RESEARCH FOUNDATION2019-10-02T18:12:48+10:00

BILL MOSS AO ON THE ALAN JONES BREAKFAST SHOW

Chairman Bill Moss AO talks with Alan Jones as the Foundation is announced as the Charity of the Year in the Australian Charity Awards 2017 Alan Jones: I often say it’s important to give credit where it’s due. There are a million charities these days, and it’s important to [...]

BILL MOSS AO ON THE ALAN JONES BREAKFAST SHOW2019-10-02T18:12:48+10:00

2017 CHARITY OF THE YEAR!

CHARITY OF THE YEAR ANNOUNCED AT THE AUSTRALIAN CHARITY AWARDS 2017 FSHD Global Research Foundation has been recognised as Charity of the Year (CHY) in The Australian Charity Awards 2017. Now in their fifth year, The Australian Charity Awards are a partner program of The Australian Business Awards and have [...]

2017 CHARITY OF THE YEAR!2019-10-02T18:12:48+10:00

SOPHIE’S STORY

I’m 10 years old and I want to tell you what living with FSHD is like for me. How FSHD affects me every day FSHD affects me every day. It stops me having a normal day like everyone else by giving me pains in my shoulders, neck and legs [...]

SOPHIE’S STORY2019-10-02T18:12:48+10:00

THE POWER OF WORKPLACE GIVING

Join our team and start fundraising! City2Surf will be held on Sunday, August 13, 2017. It highlights the importance of muscles in our bodies. It encourages people of the public to fundraise for a great cause and gets them active and using their muscles to participate in an amazing day [...]

THE POWER OF WORKPLACE GIVING2019-10-02T18:12:48+10:00

2017 CITY2SURF

Join our team and start fundraising! City2Surf will be held on Sunday, August 13, 2017. It highlights the importance of muscles in our bodies. It encourages people of the public to fundraise for a great cause and gets them active and using their muscles to participate in an amazing day [...]

2017 CITY2SURF2019-10-02T18:12:48+10:00

WORLD FSHD DAY

Get planning for this June 20 World FSHD Day is held on June 20 and aims to raise public awareness for FSHD. Few members of the public have ever heard of FSHD, and many affected individuals don’t know that they have the condition. This international day aims to bring awareness of [...]

WORLD FSHD DAY2019-10-02T18:12:48+10:00

BONE HEALTH IN FSHD

FSHD Global Research Grant 23 Update In a first for the FSHD field, a study has been published looking closely at the morbidity of low bone density and bone fracture risk in patients suffering from FSHD.  The FSHD Global Foundation played a particularly proactive role in supporting this study beyond [...]

BONE HEALTH IN FSHD2019-10-02T18:12:48+10:00

OUR NEWEST PARTNERSHIP: AUSTRALIAN OPAL CUTTERS & PEARL DIVERS

We are a proud charity partner of Australian Opal Cutters & Peal Divers. This year, we officially welcome Australian Opal Cutters & Pearl Divers as a Corporate Partner of the Foundation. This family run business has been a supporter of the Foundation for a number of years and is [...]

OUR NEWEST PARTNERSHIP: AUSTRALIAN OPAL CUTTERS & PEARL DIVERS2019-10-02T18:12:48+10:00

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