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We share ‘Progress’ our monthly newsletter with our community at large. If you have a story, questions or topics of interest you’d like read about, please contact us, as we’d love to hear from you.

Send an email to admin@fshdglobal.org.

MovePeds experience

Teens, Evie and Pano, are part of MOVE Peds, a crucial study to accelerate therapeutic developments for early-onset FSHD. Their

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EMMA’S STORY

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HEATHER’S STORY

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SHANE’S STORY

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TANIA’S STORY

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2019 SYDNEY CHOCOLATE BALL

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WYNDHAM DESTINATIONS CORPORATE SURF CHALLENGE 2018

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