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EMMA’S STORY

A family perspective - A cure for FSHD would mean Hannah and I can run on a beach together. She could dance and twirl till her heart is content. I hope that one day, she can. Many people in the FSHD community may remember the story of my life [...]

EMMA’S STORY2019-10-02T18:12:47+10:00

HEATHER’S STORY

Donate to the FSHD Global Christmas Appeal to help find a Cure! Hi, my name is Heather, I am 57 years old. I have 4 children and 7 grandchildren. I was diagnosed with FSHD 7 years ago.  As far as I know, I am the only one in my [...]

HEATHER’S STORY2019-10-02T18:12:47+10:00

SHANE’S STORY

Shane’s Christmas wish is to find a cure for FSHD so that his grandchildren never have to live with this insidious disease This is Shane’s Story….. My name is Shane and this is my story. I have just turned 51 years old and I have FSHD. I was first [...]

SHANE’S STORY2019-10-02T18:12:47+10:00

TANIA’S STORY

Tania is our proud NSW State Branch President, FSHD Global Ambassador & Community Liaison and Administration Assistant. She is full of warmth, positivity and laughter despite going through a tough 12 months. This is Tania’s Story… I was diagnosed with FSHD when I was 12, but I’ve had the symptoms [...]

TANIA’S STORY2019-10-02T18:12:47+10:00

2019 SYDNEY CHOCOLATE BALL

Save the date! If you would like to attend our 10th Annual Sydney Chocolate Ball in 2019 please contact the FSHD Global team at events@fshdglobal.org for more information!

2019 SYDNEY CHOCOLATE BALL2019-10-02T18:12:47+10:00

WYNDHAM DESTINATIONS CORPORATE SURF CHALLENGE 2018

Wyndham Destinations Corporate Surf Challenge “The Wyndham Destinations Corporate Surf Challenge is a great way for industry leaders to inspire and engage staff for an important cause. I encourage you to get on board and join us at this wonderful, fun-filled event to support the FSHD Global Research Foundation [...]

WYNDHAM DESTINATIONS CORPORATE SURF CHALLENGE 20182019-10-02T18:12:47+10:00

“BILL MOSS THE SINGLE-MINDED BIOTECH AND A SEARCH FOR A CURE” – THE AUSTRALIAN

By Sarah-Jane Tasker - 26th of May 2018 Bill Moss can see the words to the final chapter of his next book, and it’s about something that will not only change his life but the lives of millions of people around the globe: a cure for muscle-wasting disease FSHD. The [...]

“BILL MOSS THE SINGLE-MINDED BIOTECH AND A SEARCH FOR A CURE” – THE AUSTRALIAN2019-10-02T18:12:47+10:00

GRANT APPLICATIONS – NOW OPEN

3D Muscle Printing Biotech Tender The Foundation, in the capacity of founding investor, would like to provide seed capital towards the establishment of an early stage biotech company which would be directed at the development of technology to build new muscle tissue suitable for transplant into FSHD sufferers specifically, [...]

GRANT APPLICATIONS – NOW OPEN2019-10-02T18:12:47+10:00

START THE NEW YEAR WITH A SPLASH WITH OUR NEW CEO KATE

Join us in the Cole Classic 1km Swim this February! Join our new CEO Kate as she takes to the seas with a team of FSHD champions to raise funds for FSHD Global on 4th February 2018 at the Cole Classic Ocean Swim at Manly. As the perfect ocean swim [...]

START THE NEW YEAR WITH A SPLASH WITH OUR NEW CEO KATE2019-10-02T18:12:47+10:00

A BLOG BY TRACEY JACKSON

International Day of People with a Disability 3 December 2017 Let me start by saying …. Let’s all celebrate International Day of People with a Disability. Inclusion is vital for our wellbeing so let’s make this world a more inclusive place for all those with a disability. My name [...]

A BLOG BY TRACEY JACKSON2019-10-02T18:12:47+10:00