Mr Tim Brookes
Tim runs Brookes Home Office, a private family office providing capital and strategic advisory across M&A, private equity, venture, and
May 20, 2026
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Ms Sarah Korin
Sarah Korin has been working closely with the foundation for many years and has recently joined the board of directors.
August 18, 2025
Mr Peter Smith
Peter serves as the Foundations Community and Registry Associate, taking on the essential responsibility of managing the Cure FSHD registry.
June 20, 2025
Mr Mitch Albert
Mitch is the Foundation’s Youth Outreach Coordinator. He is passionate about soccer, NRL, and music and when he is not
April 29, 2025
Dr Christine Steinmetz-Weiss
Chrissy joins FSHD Global with twenty years of experience in research, teaching and leadership roles at the University of New
March 7, 2025
Mrs Vida Virgo
Vida is a Partner at EY with extensive experience across various corporate and non-for-profit sectors.Her experience has included audit, internal
December 19, 2024
Dr Ian Woodcock
Dr Ian Woodcock is a paediatric neurologist at the Royal Children’s Hospital, Melbourne and an honorary fellow at the Murdoch
December 10, 2024
Mrs Emma Weatherley
Emma Weatherley is CEO and Managing Director of the FSHD Global Research Foundation, Australia’s peak body for FSHD. An internationally
December 10, 2024
Prof Gina Ravenscroft
Prof Gina Ravenscroft is a Senior Research Fellow at the University of Western Australia and Group Leader of the Rare
December 10, 2024
Dr Kishore Raj Kumar
Dr Kumar is a neurologist and clinician-scientist at the Garvan Institute of Medical Research and Concord Repatriation General Hospital. He
December 10, 2024