World FSHD Day

CELEBRATE WORLD FSHD DAY THIS SATURDAY JUNE 20TH 2020!

World FSHD Day will be on Saturday 20 June 2020. World FSHD Day is a global initiative which aims to raise awareness for FSHD – one of the most common forms of muscular dystrophy and which affects over 1 million people worldwide.

This international day aims to bring awareness of this debilitating disease to the general public and decrease the misdiagnoses within the medical industry.

People from across the globe will come together over a range of different events, activities and social media to help raise awareness for one of the most prevalent forms of muscular dystrophy.

WAYS TO GET INVOLVED!

There are a number of ways that you can get involved and help support world FSHD Day.
  • Get Digital: Running a fundraiser online is easy. See a list of ideas and ways that you can do this while in isolation by downloading our fundraising kit.
  • Host an Event: Every dollar counts, so no matter how big or small your event is we’d love your support!
  • Get Social: An event might not be the ideal fundraiser for you and that’s ok, we have a bunch of social media campaigns that you can get involved in.

DOWNLOAD OUR WORLD FSHD DAY FUNDRAISING TOOL KITS!

Within our fundraising kit you will find a range of tools and ideas to help you – help us, raise awareness!

Click Here to download our World FSHD Fundraising Kit

Click here to download our social media tool kit