World FSHD Day

June 20th

CELEBRATE WORLD FSHD DAY ON JUNE 20TH!

World FSHD Day is a global initiative which aims to raise awareness for FSHD – one of the most common forms of muscular dystrophy and which affects over 1 million people worldwide.

This international day aims to bring awareness of this debilitating disease to the general public and decrease the misdiagnoses within the medical industry.

People from across the globe will come together over a range of different events, activities and social media to help raise awareness for one of the most prevalent forms of muscular dystrophy.

WAYS TO GET INVOLVED!

There are a number of ways that you can get involved and help support world FSHD Day.
  • Get Digital: Running a fundraiser online is easy. See a list of ideas and ways that you can do this by downloading our fundraising kit.
  • Host an Event: Every dollar counts, so no matter how big or small your event is we’d love your support!
  • Get Social: An event might not be the ideal fundraiser for you and that’s ok, we have a bunch of social media campaigns that you can get involved in.