START THE NEW YEAR WITH A SPLASH WITH OUR NEW CEO KATE

Join us in the Cole Classic 1km Swim this February! Join our new CEO Kate as she takes to the seas with a team of FSHD champions to raise funds for FSHD Global on 4th February 2018 at the Cole Classic Ocean Swim at Manly. As the perfect ocean swim [...]

START THE NEW YEAR WITH A SPLASH WITH OUR NEW CEO KATE2019-10-02T18:12:47+10:00

WORLD FSHD DAY

Get planning for this June 20 World FSHD Day is held on June 20 and aims to raise public awareness for FSHD. Few members of the public have ever heard of FSHD, and many affected individuals don’t know that they have the condition. This international day aims to bring awareness of [...]

WORLD FSHD DAY2019-10-02T18:12:48+10:00

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