Double Your Dollar

As we move towards the end of another challenging year for the FSHD Global Research Foundation, we invite you to join in our DOUBLE YOUR DONATION campaign. This campaign provides you the opportunity to make a donation and have your dollar and impact doubled. To kickstart this program, we are [...]

Double Your Dollar2022-11-24T21:32:23+10:00

2021 Muscles for Muscles Squat Challenge

We are proud to announce that the annual Muscles for the Muscles Squat Challenge will be held during the month of May 2021. The aim of this campaign is to build muscles for those who can’t and importantly drive awareness and funding towards finding treatments and a cure for FSHD. [...]

2021 Muscles for Muscles Squat Challenge2022-11-24T21:35:56+10:00

FSHD Medical Education Portal

Thank you to our wonderful community who have registered with our FSHD Medical Education Portal. We have received a wonderful response since launching the Portal in December 2020. The purpose of this initiative is to: Roll out an FSHD Saliva Research Testing program nationwide to ascertain disease prevalence across Australia Help [...]

FSHD Medical Education Portal2022-11-24T21:38:20+10:00

2021 Science Information Sessions

Over the years, FSHD Global has hosted Science Information evenings in Sydney, Melbourne, Brisbane, Perth and even Auckland New Zealand, with the aim to educate and update our FSHD community on medical research advances and to provide the opportunity to ask some of our expert panel questions relating to FSHD. [...]

2021 Science Information Sessions2022-11-24T21:40:17+10:00

2020 Annual Report

The 2020 FSHD Global Annual Report is a valuable resource, providing information on the Foundation, our work, our community and supporters. To view the report, visit to download a copy of our online version.

2020 Annual Report2022-11-24T21:43:01+10:00

FSHD Global publishes clinical practice considerations for FSHD

Clinical practice guidelines are an important part of clinical practice for many health professionals. Health professionals need to know about, understand and critically appraise new evidence as it becomes available. The problem facing many health professionals is the pace at which new evidence is generated. It’s estimated that 2.5 [...]

FSHD Global publishes clinical practice considerations for FSHD2019-10-02T18:12:48+10:00

FSHD Educational Toolkits

The Foundation is thrilled to release a range of educational toolkits for patients, GP's and Allied Health Professionals. Our goal is to empower our community when championing for support within the medical world. In September 2015 FSHD Global convened a workshop of 13 leading international and Australian clinicians to develop [...]

FSHD Educational Toolkits2019-10-02T18:12:49+10:00

ASX Thomson Reuters Charity Foundation Art Union 2017

We are proud once again to be involved in the ASX Thomson Reuters Charity Foundation art union. Tickets sold will go towards raising funds for medical research into finding treatments and a cure for FSH Muscular Dystrophy. 1st Prize: New Lexus RX200T valued at $80,449* The dynamic RX200t delivers [...]

ASX Thomson Reuters Charity Foundation Art Union 20172019-10-02T18:12:49+10:00


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