World FSHD Day is a global initiative which aims to raise awareness for FSHD – one of the most common forms of muscular dystrophy and which affects over 1 million people worldwide.

This international day aims to bring awareness of this debilitating disease to the general public and decrease the misdiagnoses within the medical industry.

People from across the globe will come together over a range of different events, activities and social media to help raise awareness for one of the most prevalent forms of muscular dystrophy.