Claire lives in Perth, Western Australia with her daughter, Sabine. Claire was diagnosed with FSHD at 14 and has been using a wheelchair since 29 years of age.

Claire has spent the last 15 years working in the Community Services industry in a variety of roles. Her career began with running her Life Coaching business, which involved Life Coaching, Public Speaking, training and advocacy. She went on to lecture at TAFE in the areas of community services and New Opportunities for Women. Then working at Disability Services Commission as a Local area Coordinator.

Claire spent three years on a Ministerial Advisory Committee to the State Minister for Disabilities and was chairperson for the Community & Family Living panel; leading funding decision for individuals and families with a person with a disability. Claire won the People with Disabilities WA Media Award for excellence in multi media for her autobiography, Invisible Opponent, was a category finalist in the Browns Yoghurt Every Woman of the Year awards and nominated for the Human Rights Medal and Awards.

Claire has spent the last 9 years as an Elected Member for the Town of Victoria Park, 2 of those years as Deputy Mayor.Her greatest success and motivation is her daughter Sabine; she is the ‘rock to my roll’. My dream is to find a cure for FSHD so I can feel free and dance with my girl. The Foundation represents that door to freedom.