Leona Luke (QLD)
Leona lives at Tallebudgera in QLD. She was diagnosed at age 26 with FSH.
Leona has fifteen years’ experience in media and communications. She works for a large engineering firm managing communications and engagement for major infrastructure projects. She still dabbles in Journalism having previously established the Gold Coast NBN TV News Bureau and she was a producer, reporter and newsreader for some of the largest radio and TV networks in Australia.
But her greatest passion is looking after her beautiful 3 year old daughter Rosie who fills her life with so much joy. She also adores her loving husband EJ and the family daschund/mini foxie “Snoopy”.
Her greatest dream is to find a cure for FSHD and to one day see her mum (who also has FSHD) go shopping with her for hours on end and to buy those fashionable shoes that they love but can never seem to walk in.