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WE ARE PROUD TO BE RECOGNISED BY THE AUSTRALIAN CHARITY AWARDS
FSHD Global has been recognised as a Winner for Outstanding Achievement in the Australian Charity Awards 2016. We are thrilled to be recognised as a Winner for Outstanding Achievement in the 2016 Australian Charity Awards. This incredible award recognises FSHD Global’s commitment to addressing medical research into Facioscapulohumeral Muscular [...]
SHORT STORY FROM DANIEL HOWE – LIFE WITH FSHD
Lavender Blues Harsh reflections and hindsight plainly revealed now how my recent twilight nightmare of an accident was such a scary but avoidable experience and one I could very well have done with-out. This dicey state of affairs occurred when I endeavored to lean over and retrieve a pair [...]
FOLO – SHOPPING FOR LOVE
A new way of giving We are proud to join Folo as a charity in the innovative shopping for love platform. The Family Philanthropic Fund, The Pure Foundation has launched the Folo platform, which automatically allocates donations as users shop online. With no cost to the consumer, this is a [...]
A NEW MECHANISM FOR FSHD
New drug targets FSHD is a progressive muscle wasting disease caused by a genetic mutation on chromosome 4 where a reduction in the number of repeated units in what is called the D4Z4 region, or mutations in a gene called SMCHD1, leads to the expression of a toxic gene [...]
SEEKING A VOLUNTEER GRAPHIC DESIGNER
Build your portfolio and make a difference at the same time! The FSHD Global Research Foundation focuses on finding treatments and a cure for the debilitating muscle wasting disease, Facioscapulohumeral Muscular Dystrophy (FSHD). In doing so, we fund world-class medical research, awareness and education. FSHD Global does not operate like [...]
FSHD GLOBAL PUBLISHES CLINICAL PRACTICE CONSIDERATIONS FOR FSHD
FSHD Global publishes clinical practice considerations for FSHD Clinical practice guidelines are an important part of clinical practice for many health professionals. Health professionals need to know about, understand and critically appraise new evidence as it becomes available. The problem facing many health professionals is the pace at which [...]