This rare disease affects 1 in every 7500 Australians and is frequently misdiagnosed. With no funding from the Australian government, FSHD Global relies on your ongoing support and determined effort to help us dramatically advance the pace and direction of research into FSHD.
We believe there should be an onus on charities to communicate clearly , transparently and consistently about how donations are being spent. The FSHD Find a Cure app allows every donor to track their donation and see which research project(s) their money has been allocated to, providing real time milestones of these grants and even connects donors directly to their scientists.
Building upon our pure 100% model donors have the opportunity to not only make a donation, but elect the particular grant and area of research they wish to support again reinventing the traditional charity model of giving.