There are a number of places where you can find up to date information on research into FSHD. The Foundation now has a blog where new evidence will be discussed and dissected. If you would like to be kept informed about when new blog posts go live email to be added to the mailing list.

FSH Society and Friends of FSH Research also have updates on research. Treat-NMD is another excellent resource.

You may also want to search for research papers on pubmed . Pubmed is the global repository of every scientific paper published. If you come across a study that you would like summarised or explained email We are happy to create posts summarising new research and suggestions are always welcome!