FSHD Global proud to be involved in unique ethical partnershipMarch 9, 2017
Start the New Year with a splash with our new CEO Kate:
Join us in the Cole Classic 1km Swim this February!Cole Classic, Fundraise, FSHD, Muscles for Muscles
A blog by Tracey Jackson:
International Day of People with a Disability 3 December 2017International Day of People with a Disability, FSHD, Community,
FACIOSCAPULOHUMERAL DYSTROPHY LIFESTYLE EDUCATION & EXERCISE PROGRAM (FSHD-LEEP)FSHD, Exercise, Canberra
Show your support for FSHD Global Research Foundation:
2017 Charity of the Year in the Australian Charity awardsCharity of the year, Workplace giving, Supporters
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Chairman Bill Moss AO talks with Alan Jones as the Foundation is announced as the Charity of the Year in the Australian Charity Awards 2017FSHD Media, Bill Moss AO, Alan Jones
2017 Charity of the Year!:
CHARITY OF THE YEAR ANNOUNCED AT THE AUSTRALIAN CHARITY AWARDS 2017FSHD Global, Awards, Charity of the Year
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Join our team and start fundraising!Fundraising, How you can help, how to register
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World FSHD Day:
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FSHD Global is proud to be hosting an open garden this April 29 & 30.open gardens, Mount Wilson, FSHD Global
FSHD Global proud to be involved in unique ethical partnership:
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Facio-therapies recently announced a breakthrough development in FSHD drug discovery.research, science, fshd, facioscapulohumeral dystrophy, biotech
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We are proud to be recognised by The Australian Charity Awards:
FSHD Global has been recognised as a Winner for Outstanding Achievement in the Australian Charity Awards 2016.charity, awards, FSHD
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FSHD Global publishes clinical practice considerations for FSHD:
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Altering Gene Expression:
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Treatments for FSHD:
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Cape York Native Title Holders Partner with Corporate Australia to Establish Economic Empowerment
FSHD Global is proud to be involved in a partnership between Boston Indigenous Leisure and Tourism and the Gudang-Yadhaykenu clan. Boston Indigenous Leisure & Tourism is an Australian based Investment House specialising in creating socially responsible tourism and leisure related businesses incorporating Government, Private Investors and Indigenous Communities. A unique charitable trust base structure ensures that a defined percentage of all profits and/or underlying ownership always remains with the community in an efficient and sustainable manner.
We are pleased to announce that FSHD Global has been gifted a small percentage of equity in this venture, and we are excited to see the successful outcomes this brings to the local indigenous community.
Read the full article featured in the Australian here.
Boston Indigenous Leisure & Tourism Press Release
Native Title Holders, The Gudang / Yadhaykenu Tribal Clan Group, and a company founded by Bill Moss AO Boston Indigenous Leisure and Tourism (BILT) have announced a partnership to develop the Tip of Cape York in Far North Queensland.
This historic signing will see economic development undertaken in the areas of tourism, leisure and agriculture, that will create a sustainable economic base for the Gudang / Yadhaykenu Tribal clans people with a series of charitable trusts being developed in the areas of health, education and employment for the benefit of current and future generations.
The Gudang / Yadhaykenu Country covers over one million acres on the east side of the northern peninsula of Cape York.
Bill Moss AO, philanthropist and former Executive Director of Macquarie Bank, is an advocate for the indigenous empowerment of Australia’s First Nations Peoples and their rights to be economically independent in business.
Jason Irvine, Executive Director of BILT, and the Wyamarra family on behalf of the Gudang / Yadhaykenu tribal clans have been in discussions for the past year to establish a unique business model which supports local business initiatives and will attract investors and philanthropists.
BILT is a socially responsible investment company specializing in leisure, tourism and agriculture in remote communities. It employs a unique charitable trust structure to ensure a percentage of all profits remain with the community in an efficient and sustainable manner. This framework is focused on increasing employment opportunities, health, wealth and education by partnering with local communities and investors in sustainable business.