2017 Charity of the Year!August 16, 2017
Donate to the FSHD Global Christmas Appeal to help find a Cure!FSHD Global Research Foundation
Shane’s Christmas wish is to find a cure for FSHD so that his grandchildren never have to live with this insidious diseaseFSHD Global Research Foundation
Tania is our proud NSW State Branch President, FSHD Global Ambassador & Community Liaison and Administration Assistant. She is full of warmth, positivity and laughter despite going through a tough 12 months.FSHD Global Research Foundation
Facio Therapies AnnouncementFSHD Global Research Foundation
2019 Sydney Chocolate Ball:
Save the date!FSHD Global Research Foundation
Wyndham Destinations Corporate Surf Challenge 2018:
Wyndham Destinations Corporate Surf ChallengeFSHD Global Research Foundation
“Bill Moss the single-minded biotech and a search for a cure” – The Australian:
By Sarah-Jane Tasker - 26th of May 2018FSHD Global Research Foundation
Grant Applications – Now Open:
3D Muscle Printing Biotech TenderResearch, Grant Applications, Science
Start the New Year with a splash with our new CEO Kate:
Join us in the Cole Classic 1km Swim this February!Cole Classic, Fundraise, FSHD, Muscles for Muscles
A blog by Tracey Jackson:
International Day of People with a Disability 3 December 2017International Day of People with a Disability, FSHD, Community,
FACIOSCAPULOHUMERAL DYSTROPHY LIFESTYLE EDUCATION & EXERCISE PROGRAM (FSHD-LEEP)FSHD, Exercise, Canberra
Show your support for FSHD Global Research Foundation:
2017 Charity of the Year in the Australian Charity awardsCharity of the year, Workplace giving, Supporters
Bill Moss AO on the Alan Jones Breakfast Show:
Chairman Bill Moss AO talks with Alan Jones as the Foundation is announced as the Charity of the Year in the Australian Charity Awards 2017FSHD Media, Bill Moss AO, Alan Jones
2017 Charity of the Year!:
CHARITY OF THE YEAR ANNOUNCED AT THE AUSTRALIAN CHARITY AWARDS 2017FSHD Global, Awards, Charity of the Year
I’m 10 years old and I want to tell you what living with FSHD is like for me.FSHD, Community Story, Inspiring
Join our team and start fundraising!Fundraising, How you can help, how to register
The power of workplace giving:
Start making a difference todayFundraising, Workplace Giving, How you can help!
World FSHD Day:
Get planning for this June 20World FSHD day, Fundraise
Bone Health in FSHD:
FSHD Global Research Grant 23 UpdateBone health, FSHD, Grant 23
Our Newest Partnership: Australian Opal Cutters & Pearl Divers:
We are a proud charity partner of Australian Opal Cutters & Peal Divers.Corporate partner, pearls
Get Positive - A piece by FSHD Patron Justin ReidLiving with FSHD
Open Gardens – Mount Wilson:
FSHD Global is proud to be hosting an open garden this April 29 & 30.open gardens, Mount Wilson, FSHD Global
FSHD Global proud to be involved in unique ethical partnership:
Cape York Native Title Holders Partner with Corporate Australia to Establish Economic Empowermentcharity, donations, business, ethical, indigenous
FSHD Educational Toolkits:
Getting the support you and your health professionals needFSHD, consensus, medical guide
Rare Disease Day:
Awareness is key.FSHD, RareDiseaseDay, fundraising, awareness
A major issue for FSHDfatigue, fshd, exercise, physiotherapy
Reading the science:
How to tell the good from the not so good.FSHD, facioscapulohumeral muscular dystrophy, publications, science
Facio-therapies announce breakthrough:
Facio-therapies recently announced a breakthrough development in FSHD drug discovery.research, science, fshd, facioscapulohumeral dystrophy, biotech
Exercise & FSHD:
The Latest Studyconsensus, FSHD, exercise
We are proud to be recognised by The Australian Charity Awards:
FSHD Global has been recognised as a Winner for Outstanding Achievement in the Australian Charity Awards 2016.charity, awards, FSHD
Short Story from Daniel Howe – Life with FSHD:
Lavender BluesFSHD, lavender,
Folo – Shopping for Love:
A new way of givingfolo, philanthropy, giving, charity, shopping
A new mechanism for FSHD:
New drug targetsFSHD, D4Z4, Dux 4, science
Seeking a Volunteer Graphic Designer:
Build your portfolio and make a difference at the same time!volunteer, graphic designer
FSHD Global publishes clinical practice considerations for FSHD:
FSHD Global publishes clinical practice considerations for FSHDscience
FSHD : It’s not all just about muscles.:
FSHD: It's not just about muscles.science, muscles, FSHD
FSHD stem cells: revolutionising research:
FSHD stem cells: revolutionising researchFSHD Global Research Foundation
CRISPR & FSHD:
Harnessing a New TechnologyScience, DNA
Altering Gene Expression:
New tools with big potentialScience DNA
Treatments for FSHD:
Small Molecules: Offering hope for people with FSHDNature chemical biology
CHARITY OF THE YEAR ANNOUNCED AT THE AUSTRALIAN CHARITY AWARDS 2017
FSHD Global Research Foundation has been recognised as Charity of the Year (CHY) in The Australian Charity Awards 2017. Now in their fifth year, The Australian Charity Awards are a partner program of The Australian Business Awards and have been established to identify, recognise and reward organisations for the exceptional work undertaken through their charitable initiatives.
“We are honoured to be recognised as the Australian Charity of the Year. This fantastic achievement highlights the calibre of the FSHD Global Research Foundation and recognises our innovation, transparency and commitment to funding world’s best medical research and education of FSH muscular dystrophy on a global scale.
Being praised for our 100% donor model, which sees every tax deductible dollar directed towards research, shed’s light on the importance of transparency and accountability within the not for profit sector. Pairing today’s technology with traditional modes of philanthropy gives the donor journey a stronger sense of impact and satisfaction, as we strive towards an ultimate cure, “said FSHD Global Research Foundation, Natalie Moss, Managing Director said.
This prestigious accolade will act as a tool for the Foundation to obtain exposure, recognition and acknowledgement for our distinctive & innovative 100% charity model on a prominent and far-reaching scale. This will also provide a platform to increase the general public awareness for this genetic disease.
FSHD Global Research Foundation is honoured and humbled to be awarded this award. As a small organisation built on a strong culture of pure passion and determination, we rely on the generosity, time and expertise of our community to continue to excel. We are fortunate to have an incredible support network made possible by our non-remunerated Board of Directors, Patrons, Ambassadors, staff and volunteers. This award is a testament to all of our supporters who have given their time and money to us with the confidence we will remain driven and accountable in our quest to find treatments and a cure for Facioscapulohumeral muscular dystrophy (FSHD).
“Today, charitable organisations are facing ongoing challenges in their operating environment. Measuring the performance and impact of their initiatives has become an important part of operations for the third sector,” Australian Charity Awards Program Director, Ms Tara Johnston, said.
“In this context, the sustainability of charities depends more than ever on their performance management and their ability to innovate. Being innovative has the potential to elevate charitable organisations in their efforts to achieve a long-term social impact and financial sustainability.
“The Australian Charity Awards 2017 are proud to acknowledge the role of charitable organisations in Australia and commend FSHD Global Research Foundation for being recognised as Charity of the Year,” Ms Johnston added.
About the Awards
The Australian Charity Awards provide organisations with the opportunity to raise the awareness of their important causes by having their projects, initiatives, contributions and achievements recognised through a national recognition program. The program is open to charitable organisations including charitable funds and charitable institutions operating in Australia. Charitable institutions include Public Benevolent Institutions and Health Promotion Charities.
Entrants are required to demonstrate the execution of innovative, well-managed, high-performing charitable initiatives. The World Business Awards Framework is utilised as a structured model of assessment that enables the participating organisations to be benchmarked against world class performance standards.
The Australian Charity Award for Outstanding Achievement (OAA) culminating in an overall winner for Charity of the Year (CHY) honour the dedication and achievements of charitable organisations and the measurable impact of their initiatives. Initiatives can include but are not limited to projects, programs, processes, services, systems, technologies, developments, ventures and undertakings.
For more information on The Australian Charity Awards and the 2017 Winners go to www.australiancharityawards.com.au.
For further information or comment, contact:
Natalie Moss Managing Director FSHD Global Research Foundation firstname.lastname@example.org 0404 869 902 www.fshdglobal.org