MITCHELL ALBERT FSHD has robbed Mitchells childhood much quicker than we could have ever expected. Picture looking back at photo’s of the past, and how they can bring a smile to your face. Looking back at pictures of Mitchell, my husband and I have moments of happiness [...]
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So far Rajat has created 47 blog entries.
EMMA WEATHERLEY Having been diagnosed with FSHD only about 3 years ago, my progression has been swift and in a lot of ways I have not been prepared, either emotionally or financially for this new life direction. About 12 months ago, I started using a wheelchair [...]
TRACEY MORRIS It was in 1991 when I began to notice problems with my right shoulder, the only conclusion by any of the medical professionals I saw was that my symptoms were being put down to having had a virus of some sort in the muscle [...]
MICHELLE MACKAY I am fifty eight years old and was diagnosed with FSHD when I was twenty-four. I was diagnosed by a professor in London who assured me that this was the “best disease” I could get and to go forward and live and enjoy my life. He [...]
A family perspective - A cure for FSHD would mean Hannah and I can run on a beach together. She could dance and twirl till her heart is content. I hope that one day, she can. Many people in the FSHD community may remember the story of my life [...]
Donate to the FSHD Global Christmas Appeal to help find a Cure! Hi, my name is Heather, I am 57 years old. I have 4 children and 7 grandchildren. I was diagnosed with FSHD 7 years ago. As far as I know, I am the only one in my [...]
Shane’s Christmas wish is to find a cure for FSHD so that his grandchildren never have to live with this insidious disease This is Shane’s Story….. My name is Shane and this is my story. I have just turned 51 years old and I have FSHD. I was first [...]
Tania is our proud NSW State Branch President, FSHD Global Ambassador & Community Liaison and Administration Assistant. She is full of warmth, positivity and laughter despite going through a tough 12 months. This is Tania’s Story… I was diagnosed with FSHD when I was 12, but I’ve had the symptoms [...]
Save the date! If you would like to attend our 10th Annual Sydney Chocolate Ball in 2019 please contact the FSHD Global team at firstname.lastname@example.org for more information!
Wyndham Destinations Corporate Surf Challenge “The Wyndham Destinations Corporate Surf Challenge is a great way for industry leaders to inspire and engage staff for an important cause. I encourage you to get on board and join us at this wonderful, fun-filled event to support the FSHD Global Research Foundation [...]