About Rajat

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So far Rajat has created 47 blog entries.

MITCHELL ALBERT

MITCHELL ALBERT FSHD has robbed Mitchells childhood much quicker than we could have ever expected. Picture looking back at photo’s of the past, and how they can bring a smile to your face. Looking back at pictures of Mitchell, my husband and I have moments of happiness [...]

MITCHELL ALBERT2019-05-29T15:13:20+10:00

EMMA WEATHERLEY

EMMA WEATHERLEY Having been diagnosed with FSHD only about 3 years ago, my progression has been swift and in a lot of ways I have not been prepared, either emotionally or financially for this new life direction. About 12 months ago, I started using a wheelchair [...]

EMMA WEATHERLEY2019-05-29T15:08:01+10:00

TRACEY MORRIS

TRACEY MORRIS It was in 1991 when I began to notice problems with my right shoulder, the only conclusion by any of the medical professionals I saw was that my symptoms were being put down to having had a virus of some sort in the muscle [...]

TRACEY MORRIS2019-05-29T15:01:43+10:00

MICHELLE MACKAY

MICHELLE MACKAY I am fifty eight years old and was diagnosed with FSHD when I was twenty-four. I was diagnosed by a professor in London who assured me that this was the “best disease” I could get and to go forward and live and enjoy my life. He [...]

MICHELLE MACKAY2019-05-29T15:02:18+10:00

EMMA’S STORY

A family perspective - A cure for FSHD would mean Hannah and I can run on a beach together. She could dance and twirl till her heart is content. I hope that one day, she can. Many people in the FSHD community may remember the story of my life [...]

EMMA’S STORY2019-06-07T18:09:29+10:00

HEATHER’S STORY

Donate to the FSHD Global Christmas Appeal to help find a Cure! Hi, my name is Heather, I am 57 years old. I have 4 children and 7 grandchildren. I was diagnosed with FSHD 7 years ago.  As far as I know, I am the only one in my [...]

HEATHER’S STORY2019-06-07T17:23:21+10:00

SHANE’S STORY

Shane’s Christmas wish is to find a cure for FSHD so that his grandchildren never have to live with this insidious disease This is Shane’s Story….. My name is Shane and this is my story. I have just turned 51 years old and I have FSHD. I was first [...]

SHANE’S STORY2019-06-07T17:24:10+10:00

TANIA’S STORY

Tania is our proud NSW State Branch President, FSHD Global Ambassador & Community Liaison and Administration Assistant. She is full of warmth, positivity and laughter despite going through a tough 12 months. This is Tania’s Story… I was diagnosed with FSHD when I was 12, but I’ve had the symptoms [...]

TANIA’S STORY2019-06-07T17:26:54+10:00

2019 SYDNEY CHOCOLATE BALL

Save the date! If you would like to attend our 10th Annual Sydney Chocolate Ball in 2019 please contact the FSHD Global team at events@fshdglobal.org for more information!

2019 SYDNEY CHOCOLATE BALL2019-06-07T17:27:33+10:00

WYNDHAM DESTINATIONS CORPORATE SURF CHALLENGE 2018

Wyndham Destinations Corporate Surf Challenge “The Wyndham Destinations Corporate Surf Challenge is a great way for industry leaders to inspire and engage staff for an important cause. I encourage you to get on board and join us at this wonderful, fun-filled event to support the FSHD Global Research Foundation [...]

WYNDHAM DESTINATIONS CORPORATE SURF CHALLENGE 20182019-06-07T17:28:04+10:00