The FSHD Global Research Foundation is an Australian not-for-profit organisation dedicated to finding a   treatment and cure for Facioscapulohumeral Dystrophy (FSHD).

The FSHD Global Research Foundation has funded twenty two research projects over the past six years in the USA, Netherlands, Italy, France, Belgium, Canada and Australia.

The FSHD Global Research Foundation has funding available for research directed at the twin goals of better understanding the human disease Facioscapulohumeral Dystrophy and identifying treatments.

FSHD funding comes from individuals afflicted by FSHD, their friends, supporters and corporate sponsors. 100% of tax deductible donations have been allocated to current or future research grants.

We do not receive government or MDA support of any kind. If you can donate or contribute in any way please contact us and help us make up for lost time.

Click to read about our achievements.